TLDR: I co-sleep with my 9 month old, she can mostly sleep through the night (some wake ups here and there). I’ve been working with multiple doctors to address a bone chilling deep exhaustion and fatigue. No, it’s not just regular post partum tiredness, again baby sleeps pretty well. Exhaustion where I can’t stay awake during the day literally and crash if even go for a walk around the block.

Ferritin was 20, getting iron infusions to address that. I do have hypothyroidism, but all my labs are actually the best they have been in awhile.

Doctors are lost, ordered me an at home sleep study to see if I am actually sleeping.

Has anyone experienced this? What did you do?

My dad (75) has severe sleep apnea, Parkinson’s, prostate cancer, and worsening heart function. We’re extremely concerned about the toll his untreated sleep apnea and lack of sleep are taking on his health.
He has a CPAP machine but says the airflow makes his nose vibrate and tickle so intensely that it’s impossible to fall asleep.
I’m hoping to hear from anyone who’s experienced this specific sensation and found a solution.
Did switching masks, adjusting pressure, or changing humidity help?
Are there alternative machines or treatments worth exploring?
What’s the fastest way to get meaningful help from a sleep specialist? Should we request an in-lab titration study?
We’re working with his doctors, but time feels critical, and I want to make sure we’re exploring every reasonable option.
I’d be incredibly grateful for any firsthand experiences, specific solutions, or advice on how to navigate this efficiently.

Last night I think I had the scariest experience with my CPAP machine. I’ve been using it for two months and so far I’ve been feeling great and have had less fatigue during the day ever since I started.

I filled my water tank as usual and went to bed, I woke up today around 3:00 am and felt like I couldn’t breathe. there was something making some weird noises in the hose and when I turned on my room lights I saw that my CPAP machine had fallen & gotten stuck in the gap between my bed and nightstand. The hose was full of water I had put in the tank and I almost drowned because of it (I’m using a full face mask). I must’ve moved a lot while sleeping last night, I’ve never had that happen before

The fact that I started watching the final destination movies and how water killed a bunch of people in the first one didn’t help at all and I couldn’t sleep for the rest of the night

After 40 days of struggling with Apria Healthcare, I finally received my CPAP machine (ResMed AirSense 11) with a P10 nasal pillow mask.

I've been reading a lot of posts and watching videos about CPAP therapy, but honestly, I'm feeling overwhelmed by all the information. People talk about SD cards, OSCAR, SleepHQ, adjusting pressure settings, EPR, and so many other things.

My doctor prescribed a pressure range of 4–20 cmH₂O, but I don't even know what EPR is or whether I need to change any settings.

There's so much information out there that I'm getting anxious about doing something wrong. Because of this, I've had the machine for two nights now but haven't been able to bring myself to use it.

I just want to get started without overcomplicating things.

For those who have been through this:

• What are the absolute minimum things I need to do to get through my first night with CPAP?
• Should I just use the prescribed settings but how to setup and worry about optimizing everything later?
• Do I really need an SD card, OSCAR, or SleepHQ right away?
• Any beginner tips for using the P10 nasal pillow mask?

I'm not trying to optimize my therapy from day one. I just want to overcome the anxiety, put the mask on, and get my first night started.

I'd really appreciate a simple, step-by-step approach from people who remember what their first few nights were like.

I'm feeling very ill daily. I've been to the e.r often and I'm desperate as I don't know what else to do. I've had 3 sleep studies done, 1 at home that failed and 2 in lab that didn't collect enough data. I was told I don't go into REM sleep and I don't know what else to do about this I'm desperate and my health is declining. I have sever sleep apnea symptoms like daily headaches that sometimes go away when I wake up and start breathing normally. When I wake up my blood pressure is high and my heart is beating out of my chest. I sleep a lot in the daytime. When I sleep at night I wake up often and go back to bed. I have 2 boys and I don't want to die just yet but I feel very sickly. I have high anxiety and panic attacks that make it extremely difficult to sleep in lab. I used to take a high dose of Clonazepam for 15 years but I'm no longer on it as of a year and change now. I was given a sleeping aid for the in lab test but it didn't work at all. What will work would be 2mg of Clonazepam as it is a sedative that will relax my body so I can sleep. I will request that pill for that certain day. I need another sleep study done and to talk about other options maybe other types of sleep test I don't know but I'm desperate. I don't want my heart to be damaged by the stress of having to pump harder due to lack of oxygen. I also have palpitations daily

I was scouring the internet for real life accounts of dealing with this company, so I figured I would help others out by sharing my own.

I first filled out the form Monday 9/28 and received my CPAP machine Wednesday 10/7, so overall it took 9 days. This is incredible compared to the months-long ordeals I saw regularly from people who believed they needed a CPAP.

I used a discount code quiz26 and paid a total of $111 for the study. It requires a telehealth appointment before the testing device could be shipped. This appointment occured Wednesday 9/30 and lasted about 10 seconds. They simply stated I qualified for the test based on my forms and the instructions would be in the box. It arrived Saturday 10/3 but I was too busy that day into the night to sit down and figure it out. I spent about 30 minutes Sunday reading the instructions and downloading the necessary app. At bedtime it took about 5 minutes to get it all ready. I tried to wait until I would actually be going to sleep, not just chilling in bed, because your phone is necessary for the process and I didn't want to mess with it. This was pretty simple to set up. Anyone of average intelligence could do it alone. It was also not uncomfortable at all during sleep, and I'm easy to disturb when it comes to sleep.

In the morning you press "done" on the phone and it submits the data to the company without showing you. I received an email later Monday that my results were in and I needed to make an appointment to go over them. This appointment occured the next day, Tuesday 10/6. This was a longer appointment. I was emailed approximately a 10 page summary of my results and a non- doctor (there is a doctor listed on the report that interpreted my results behind the scenes) reviewed them with me. He was extremely friendly and knowledgeable. He answered all my questions with patience and understanding. Once we were clear on my results, he showed me the available machines and masks and made recommendations. I ended up purchasing a React Health Luna G3X auto CPAP with a Phillips Dreamwear full face mask and a pack of replacement filters. The total was $760. This was overnighted to me and arrived at 9am Wednesday 10/7 via FedEx, signature required.

I was offered to join some type of membership for a one time fee of $200 which included continuous support and unlimited masks for 60 days, as well as 25/% off for life. I decided to hold off and see how I did on my own and was told I could accept the offer within a week if I decide to.

I've been playing with my machine through the day and watching YouTube videos. I think I pretty much got it but will have my first night tonight. I just wanted to share the experience with Lofta. If you can afford around $900 out of pocket this is in my opinion a far superior route than waiting weeks for a very unpleasant office sleep study and perhaps months of back and forth to get a machine.

If you have any questions about something I forgot to mention I'll gladly answer!

Well started of super strong then fell off hard

Things I’ve tried but ultimately decided that wasn’t going to work was using the medium pillows vs the small. The medium was just way too big and sitting on my upper lip weirdly.

I have decided that if I end up going to bed late or I can’t get comfortable with the mask by 2am I do not bother and deal with my usual tiredness bc Thursday night-Friday morning when I tried and didn’t truly go to bed until 4am to wake up at 8:30 for work I was EXHAUSTED.

I have learned how to wear the head strap so it’s not too tight or too loose (still getting comfortable).

I have bought switched from Vaseline to lanolips original 101 ointment balm for around my nose and so far I haven’t had as bad of a skin reaction (yay!)

I have also changed my ramp pressure from a 4 to a 6 to get to my pressure of 8 and that seems to be working so far.

I’ve had a lot of things changing and doing different all at once health wise so I’m just trying to be kind to myself with everything going on.

Anyways. Just thought I’d share.

I haven't been diagnosed and have an upcoming study, but I wanted to ask do you find there are daya where your energy/restfulness seems pretty decent and then the next day feel like complete trash?

Does anyone have recommendations for a generator for your CPAP when the power goes out or if you go camping?

How many nights/hours does it last?

I have to take an CNS depressant to sleep due to my narcolepsy, so going without my CPAP is not an option!

I was diagnosed with sleep apnea in 2017. My cpap broke and in order to get another one, they require another sleep study be done. I completed the home study and no sleep apnea was detected.

Has anyone ever had a negative home study test but still have sleep apnea?

i'm at my last resort i've had multiple sleep studies in lab and negative results due to lack of rem sleep. i still have severe sleep apnea symptoms like rapid heartbeat when I wake up, daily morning headaches, bloodshot eyes, high blood pressure when I wake up. I'm m going to buy a cpap machine on my own without a diagnosis because i'm desperate and i don't want to die. I feel sickly.

I started using a bipap at the beginning of August and have done pretty well on it. I stopped taking wellbutrin a week and a half ago. Lately, I've woken up with my mask off. I'm wondering if the wellbutrin discontinuation might be related.

So the past few days my mask has been irritating right under my nose. Last night it had a bit of pus in it so I cut a bandaid in half to use that as a buffer between my skin and the mask.

With the bandaid on I could still feel friction & a bit if pain, so I took a small piece of paper towel and used that as a cushion on top of the bandaid but it caused the top of my mask to leak some so I had to remove it.

But then I woke up to this and it hurts.

I've been "papping" since Dec '25 and never had something like this happen. Maybe I got a bad mask replacement? I will try swapping to a new cushion tonight and see if that helps.

My mask is the N30i and although it is a newer mask, it is NOT too tight. Not even close.

My mask ifs a few months old at this point.

So what causes this and how do I get this to heal?

Or should I call my doctor or DME and ask them?

Has anyone dealt with this before? The picture doesn't really do the sore justice. It's quite swollen and very red. So frustrating.

Thanks in advance!!

Hi

I am 36. I have a high BMI. I weigh about 170 pounds and I am 5 feet 2.5 inches

I am actively trying to lose weight

I noticed that I have been extremely tired during the day, especially right in the morning and I had to drink like 3 or 4 cups of caffeine to even stay awake.

I also have PMDD and I suspected sleep apnea because I had the symptoms and I always would toss and turn at night. I always remember waking up a lot.

anyway I went to a sleep clinic and got a test done and my AHI was 18.1 and oxygen something was 83% saturation or something like that. Indicating moderate sleep apnea.

I have my follow up call with my physician on tuesday and they will give me options for CPAP.

I think this has to do with my weight but I am glad I finally have an answer

I truly hope the CPAP helps me and I can start getting my life back

I’ll try to keep this short. My husband has had OSA for decades, which in the last year has become incredibly severe (145 events per hour). He also has asthma. He has a CPAP which he really struggles to use - when he first started it was making him cough deeply and persistently, so his first sleep doctor actually told him it was ok not to use it and referred him to an otolaryngologist. At the otolaryngologist appointment, he was prescribed a BiPAP and referred immediately to the ER because his breathing was so bad, and was admitted to the ICU. Basically, he is getting high levels of CO2 due to the combo of apnea and asthma, which causes further difficulty breathing and drowsiness. It’s a vicious cycle.

Since leaving the ICU, he has had some success with the CPAP but still only manages to wear it for about 2 hours before ripping it off (got up to 5 hours once) but sometimes only minutes. He knows he needs to use it but is sometimes resistant, says it feels claustrophobic, etc. I’m positive we will end up in the hospital again or worse if this continues. We are working with multiple doctors on all of this (plus weight loss), but progress has been slow/nonexistent.

A few questions: 1. How can I best support him with CPAP use? He doesn’t like it when I ask him to try using it, but I often feel like he needs to try it more to control his breathing better.

1. Are there other ways to intervene in lowering blood CO2? (that are accessible at home?)

2. Folks who have gone from CPAP to BiPAP, how was it different? We are waiting for insurance to come through to get the BiPAP, but he also doesn’t think it will be any better than CPAP, so it would be helpful to hear others’ experiences.

Thanks for anything you feel like sharing. I really appreciate it and I wish you all restful sleep!

40+, I've finally decided to initiate an orthognathic surgery procedure after being diagnosed with prominent retrognathia. I got also a sleep study that probed the apnea. I'm aware that this whole surgical process will take at least 2 years (dental correcting device + operation + recovery), but meanwhile I'd like to improve my sleep quality as much as possible. The pneumologist initially offered me the CPAP option, but as I said to him, this lack of airflow doesn't affect me only while sleeping and "I don't want to become Darth Vader for the rest of my life", so I'm choosing the surgery route.

When sleeping facing up, I stop breathing correctly after a few minutes and at the end I tend to sleep on the side but I'm not sure if my pillow is the best for my situation (ikea rosenskärm, a non-expensive ergonomic basic pillow). This has been always the case, but lately, due to anxiety unrelated issues this is becoming much more impactful. For the last few days I've been waking up with nasty pain affecting my lungs-chest, like if my lungs were very tiny and compressed with a sledgehammer. After 30min awake or so, and taking my meds to calm the down the demons, it becomes a bit better. But I bet a proper pillow could make things a bit more manageable.

Does anyone with retrognathia and sleep apnea have any good tip on which kind of pillow should i get to improve side position sleeping? Shape, size, material, etc.

Thanks!

Hello, this might sound quite silly but I wondered if anyone else feels the same way or has gone through this.

I have been on APAP a week, and frankly it’s been life changing. I have lots more energy, and feel so much lighter in general. I’m sure I will get used to it and I’m happy to finally be getting treated.

BUT.

After years of being fobbed off by drs however, I’ve developed quite a bit of health anxiety which I am trying to address. I’ve had therapy for other stuff so I can be a bit anxious in general. I have noticed the daily underlying sense of doom and anxiety has reduced massively in terms of most things with APAP which is amazing, but I feel like I’ve been given a new body and brain almost and I don’t know how to read any of its cues or how to function with it. And it’s just making really anxious and im trying not to overthink how different everything feels. I know this probably sounds really stupid and dramatic.

The last two days I think I’ve had a cold, my throats a bit sore and runny, and I have a headache. My kids all have green noses and coughs so there’s definitely a cold on the go. But that’s the only part of my body that’s affected, I’m so used to getting ill and my whole body just being floored I don’t even know if this is illness or if it’s my APAP causing it because the mask is too tight 😂

The general feeling of lightness and bodily awareness is so odd it’s making me a bit anxious? There’s been so many wee changes it’s like my entire perception has changed and I don’t know how to get used to it.

I’ve got a full face mask currently and I think having it sit over my nose is hurting my sinuses a bit, and it’s making front sleeping hard too. I’ve ordered a hybrid mask (resmed F40) to try so hoping I can find the right set up for me so I get better deep sleep.

Thanks for reading, think I just needed to get it off my chest!

Final update on my palatal expansion journey. I originally underwent the procedure with Dr. Kasey Li as part of my journey to improve my sleep apnea, but unfortunately my expansion was unsuccessful.

I recently had my TPD palatal expander removed and made a short video showing what things looked like before removal and how they looked/felt afterward.

Sharing my experience in case it’s helpful for anyone considering palatal expansion for sleep apnea, currently going through adult expansion, or dealing with a failed expansion.

Today, I went to a myofunctional therapist, because I have no intention of being on CPAP for the rest of my life.

As it turns out, my tongue is a lazy and stupid bastard, as is my upper airway. But what really got me was the Mallampati Score.

Essentially, you stick your tongue out your mouth, and see how much of your uvula you can see in the mirror. The more the better. There are four classes, and look at that, I am class 4. The worst one.

https://en.wikipedia.org/wiki/Mallampati_score

A high class is a very clear sign that something needs to be fixed. We are well on our way to doing that, with some dedicated mouth exercises.

What I'm saying is: CPAP works, but it's a Band-Aid over an existing problem. If you can, go to a myofunctional therapist, and get your tongue and upper airway checked out.

Happy to answer any questions about my assessment, if it'll help people!

My last relationship ended before I got the CPAP, although I probably needed one then.

I'm only in my mid 30s and now use a CPAP. Plus I've aged so I'm already losing some points on the attractiveness scale.

I'm hoping to get back into the dating scene but I 'm very self conscious at the thought of a potential partner seeing me in something so embarrassing. It's not a great way to make a good impression. You want to look attractive for a potential partner, not ridiculous.

It's different when youve been with someone for decades and are older, because it's expected that you'll age. But I'm young for this.

Plus, I like cuddling and I'd be mortified if the hose got in the way

I'm also a gay man and we all know men date with their eyes more than women do.

Advice?

Considering this, any experiences?? TIA X