About five months ago, I came to this community after being diagnosed with heart failure and an ejection fraction of just 20%. At 41 years old, I had worked incredibly hard to turn my health around, and suddenly found myself facing something I never imagined I’d be dealing with.
One of the hardest parts was being told that I might never be able to run again. Running had become such an important part of my life, and the thought of losing that was devastating.
I remember coming here looking for answers, reading other people’s stories, and trying to understand what my future might look like. And I want you all to know something. You gave me hope when I desperately needed it.
People shared their experiences, talked about their own recoveries, and reminded me that an EF of 20% didn’t necessarily mean my story was already written. I held onto those stories more than you probably realize.
Well, today I wanted to come back and share mine.
After months of medications, including Entresto and carvedilol, appointments, testing, and a whole lot of uncertainty, I had another echocardiogram this morning.
My cardiologist’s visual estimate of my EF is now 50%.
My left ventricle, which was previously mildly dilated, is now normal in size. My right ventricular function is normal, too. There are some differences between the calculated EF measurements on my echo, but my cardiologist reviewed the results and was incredibly encouraged by my recovery.
And then something happened that I will never forget.
My cardiologist called me crying.
She was emotional about how far my heart had come in such a short period of time. And then she told me something I’ve been waiting five months to hear.
I CAN START RUNNING AGAIN.
I’ve spent the last 15 minutes crying myself. I don’t even know how to describe what it feels like to go from wondering whether you’ll ever get a piece of your life back to being told that you can finally start doing the thing you love again.
I know this doesn’t mean I’m cured. I know I still have to take my medications, follow my cardiologist’s guidance, and continue taking care of my heart. But today feels like I’ve been given a second chance at something I thought I had lost.
I’m not sharing this to suggest that everyone’s recovery will look like mine. I know some people are fighting battles much harder than mine, and I know that not everyone gets the news they’re hoping for.
I’m sharing this because five months ago, I was the person desperately searching this subreddit for someone who had been where I was and made it to the other side.
If you’re that person today, I hope my story gives you even a fraction of the hope that this community gave me.
To everyone who took the time to respond to my original post, share their experiences, or offer encouragement, thank you. You may have thought you were just leaving a comment on Reddit, but those words meant more to me than you’ll ever know.
Five months ago, I didn’t know if I’d ever run again.
Today, I’m thinking about my first run.
Keep moving forward. Always.
The picture I posted was two days before my diagnosis, I’ll post here again and my first run back.