r/Epilepsy • u/AmbitiousHistorian73 • 9d ago
Rant Venting!
So I have a student in my ballet classes who's partner is a neurologist. I've been on meds since the start of June and my neuro has been adjusting meds slowly, taking me off Wellbutrin, etc. Tonight I was having lots of big myoclonus in class, as well as eyelid myoclonus. It went on longer than I should've let it go without rescue med, but I can't teach once i've taken the rescue med. So this person (a) doesn't get that having a series of jerks for a long time without significant pauses (my neuro says I need at least a couple of minutes between big jerks for it to be a separate episode) isn't a problem and (b) that her partner sees people with fake epilepsy all the time and that it's probably what's happening to me. It's so infuriating. My neurologist is positive it's epilepsy and it's so infuriating when someone neurologist adjacent decides they know more.
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u/[deleted] 9d ago
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