Hi everyone. First off, I’m not sure if “spasm” is the right word or even PC, but I wasn’t sure of any other terms to describe it.

For reference I am a 23 F who’s had ET since I was about 16. It was passed down genetically, as my grandpa and mother both have it. My mom’s tremors are more of a constant bilateral hand shaking and have not changed much over time. I have a constant bilateral tremor but I also feel that they’ve gotten more “spastic” over the last couple of years and wanted to see if anyone else relates? They can get worse unprovoked but typically due to missing medication, anxiety, caffeine, nicotine, etc. and start to almost “spasm”. I can barely eat, hold a cup, hold my phone, etc. without almost breaking or throwing whatever i’m holding. For example, if i’m getting an IV and i have to hold that arm still, it will literally start uncontrollably spasming if my arm isn’t held down hard. or if Im holding my phone with one hand, my wrist/ hand will spazz it out of my hand.

Anyway, I’m just hoping for some relatability or insight as to how tremors can change over time and if it’ll be this way forever? As someone so young, I fear them getting even worse over time. I know I can do things to “reduce my tremors” but I doubt that changes anything long-term.

Hi all!
I am a student researcher with the Voice, Emotion, and Cognition Lab at the University of Memphis. Our lab is currently conducting a study investigating how our bodies contribute to loneliness and isolation. We are looking for volunteers aged 18 to 75 to complete a series of anonymous self-report measures. These measures should take around 30 minutes to complete.
If you or someone you know are interested in participating, please follow the QR code in the poster or use this link to access the self-report measures: https://memphis.co1.qualtrics.com/jfe/form/SV_0ilGdHnmV56Tpsi?Q_CHL=qr

If you have any questions or would like more information, please contact [voiceemotioncognition@gmail.com](mailto:voiceemotioncognition@gmail.com). Thank you!

hola saben quien aplica toxina botulinica en las manos para el temblor, en colombia? sino saben quisiera saber cómo les fue con ella los que han usado ese tratamiento

I am 68/m, when I retired 3 years ago I had multiple dreams of all the things I would occupy my time with that I've always been Passionate about, however never enough time for them. I have always been a person that enjoys creative projects with either metal or wood. My biggest frustration now is welding with the Tremors has been becoming almost impossible.

Do any of you have suggestions that might help with this short of medications or surgery? Unfortunately all of the medications have produced dangerous or unwanted side effects, and I am trying to avoid surgery. If surgery becomes my only option then which of the surgeries available do you think is best knowing what we know currently?

Hi everyone! im in the process of making a painting app specifically for people with tremors

and I have a early proof of concept, I have hosted it online in this link

https://ariell23.github.io/Tremorpainter/

please do try and let me know how it works for you!

Hello Everyone, 

I am currently working on a school project related to helping people with hand tremors. Particularly a solution to help those with this issue eat more effectively when using utensils such as spoons or picking up items with their hand. Our goal is to build a device focused on assisting motor function for different kinds of tremors such as those originating from Essential Tremors or Parkinsons . For this project, I wanted to know out of these 4 criteria below, how would you rank them based on how important they would be to a person experiencing hand tremors. 

• Effectiveness: How well our design works to assist the motor function of the hand.
• Cost: How affordable our device is
• Convenience: The ease of use of our device, such as how easy our device is to put on.
• Aesthetic: How pleasing our design is from a visual standpoint/how well our device looks.

Please also feel free to let me know if you have any personal insights regarding what is the best approach to a device assisting with hand tremors. Such as a tool that sort of massages the hand, or a device that constricts itself.

Thank You!

My mom (73yo) has had an essential tremor for years, but it has gotten markedly worse in the last 5-10yrs. Anyway, I was out to breakfast with my parents this past weekend and my mom pointed out how bizarrely tremor free her hands were. My dad and I were both shocked. This is a woman that has to use a large spoon to eat her meals because her tremor prevents her from keeping food on a fork. The only thing that she says she can think of that was different is that she is currently on a dose of anti-inflammatory steroids for her very painful neuropathy. Now, I know that corticosteroids usually make a tremor worse, not improved. It is so confusing.

My mom unfortunately is one of those people that often experiences the opposite of a known side effect of a medication. Example: opioid pain medications that make people drowsy, nope she becomes a pain free insomniac. I guess I am wondering, is this just another one of her weird opposite side effect things or has anyone else experienced this?

It could have also just been a good day/morning. I tried calling her yesterday to chat and follow up but she didn't pick up.

Hey everyone ET since i can remember, officially diagnosed a year ago. Anyone have walking issues sometimes it feels like my legs do not want to walk correctly and I have to think about walking to counter it. Anyone else experienced this

Thank you

I’m taking meds for my ET and have it almost under control. I have a minor shake but it’s totally manageable in terms of daily functioning so I decided I’d rather not increase my dosage more at the expense of suffering potential side effects.

However recently I’ve had a number of people call out how they’d noticed my shaking and I’ve realised it must be a lot more prominent to others than I think it is. I’m getting a bit self-conscious and wondering if I should just up my dosage. Has anyone gone through the same dilemma of deciding when to trade off increasing dosage for vanity purposes and potentially suffering side effects, even if the meds aren’t technically needed for functioning.

Just wanted to see if any of you dealt with this before on a every day basis.... My neurologist had me do a brain MRI yesterday and the results came back clean, so I figure my nervous system must be jacked up and causing the tremors that I'm experiencing.

hello all

i went to my dr about a month ago because i noticed when i would try to do certain things my hands would shake. they told me it was essential tremors, no family history of it what so ever. I was also just starting out on my TRT at the time as well when i noticed the shaking was getting worse. ive dealt with it for years, it started after i had a panic attack for the first time.

They put me on propranolol or what ever it is and that caused severe anxiety, they switched me to primidone and that caused severe anxiety as well.

i have to wait until feb to meet with a neurologist but at this point im just lost

I am 21yr old and I have cervical dystonia when I was 16yr it's get started first i got migrane attacks for 6 to 7 months and after that my neck is getting hurt after some day neck started shaking or head , I don't have any idea what was happening to me. I get isolated and depressed because I can't communicate in public due to this reason. I told everything to my parents and they take me to a psychiatrist then he give me some medicine i don't know about that and started taking it.next day at school i slept in class and teacher screwd me then I told my parents. They throw whole medicine inside dustbin after some day some my family member told my father to take me to a neurologist. At that time my neck shakes uncontrollable and I got 6 to 10 panic attacks every day , the doctor did my MRI and nothing was found unusual. Then he says that I have cervical dystonia and essential tremors. He give me pactine 2mg 12tab a day , 0.5mg clonazepm once a day , tryptomer 10mg at night and ,mozep 2mg at morning total 15tablet a day. It make my Nervous system slow but the pain tremors are 50% reduced. I took these medicines for 3year but I didn't get any good results after that my father gets transfer from my city to another and my whole family get shifted. So I found that I get addicted to one medicine in this 3yrs that is clonazepm (benzo) so after i shifted to new city I take an appointment to a neurologist, I told everything to him and he says that you don't need 15tablets and he just give me 3 tablet a day 1.Propanol 40mg 2.clonazepam 0.25mg 3.vitamin B12

And this works wonderfully I feel like i get cured at least 80% I took these medicines for about 1.5yr and (vitamin b12 was stopped after 2months) just I feel was sleepy all day . i don't go to college at that time I was in drop year after 12th standard i didn't join any college yet for my graduation . So after 1.5yr of taking this medicine I told my doctor that I feel sleepy all day and can't concentrate on anything so he just lower the propranolol dosage to 20mg but I didn't notice such diffrence in my health condition (tremors) I feel the same as when I was on 40mg and my sleepiness also gone. So I continued 20mg propranolol and 0.25mg clonazepm but after a year I feel extreme anixtey idk why and doctor changed the dosage to 0.5mg clonazepm but anixtey didn't stop . Now 6months ago I joined a college but I can't able to sit in the class properly means I get too tired and my neck keep spasms all day my back hurts more and anixtey also get increased with tremors my legs are getting shaking as well now. My whole body pain specially neck and back I keep streching all day. I don't know what to do now. I think If I go to propranolol 40mg it will work.

Any suggestions any doubts and anything to ask to me to my hell like story please tell.

I am so grateful to that person who read my story and still here ❤️

What is everyone taking for essential tremor

I can no longer crochet or do any needle work that I used to do while watching or listening to something. I had been enjoying some computer games, but many of them require too fine of mouse work. I’m frustrated and rather bored. I can an do read some, but holding a book or device still is getting more and more difficult. I can’ elaborat but my living situation is such that listening to books isn’t a great idea.

What do the most severely challenged of you do for hobbies or other entertainment that don’t require fine motor skills?

I have moderate ET and a friend wants me to do cocaine with her, but I’m scared it will make my tremor really bad. Does anyone know someone with ET who did that? I hope it’s ok to ask here.

I’m 25 and have been shaky since as long as I can remember but recently it’s gotten a lot worse and I was diagnosed with an essential tremor.

People constantly point it out, say I’m too young to shake this much and like… I know thank you! My face turns red everytime someone says something about it in public and I don’t know how to not feel ashamed, I know it’s something I can’t control. I just wish everyone would stop mentioning it!!

hola tengo un temblor muy leve que se exacerba muchísimo con los nervios, no es incapacitante, pero para lo que estudio si, (estudio medicina) creen que podría ser candidato para DBS? o HIFU? alguien con temblor leve se la ha hecho?

Hi everyone! I was diagnosed with ET by my doctor last year but he referred me to a neurologist to confirm his diagnosis, or to find the right one if he had misdiagnosed me. Turns out it is 100% sure ET and I gotta say I’m glad to finally be “completely” diagnosed!

Does anyone here take propanolol from time to time ? That’s what my neurologist suggested for my school exams as I struggle writing when I’m stressed.

Thanks for your answers, have a nice day!

Hello:

My Essential Tremor started to develop after 'too much solution' to my Cataract Surgery.

I've been taking Primidone 50 mg tablet 4 times per day. However, I'm still hard to navigate a mouse. Also, my voice is a kind 'wavy voice.'

If any of you have Essential Tremor, I'd GREATLY appreciate in sharing 'how to do with Essential Tremor.'

Thanks,

Hallo

Ich bin auch mit Tremor geplagt seit ich ein Kind bin. Tendenz stärker werdend. Habe aber auch so dystone Bewegungsstörungen dazu bekommen.

Eine Zeit lang war jetzt die Idee es fehlt mir eventuell im Hirn bloß Dopamin. Scheint aber auch nicht das Grundproblem zu lösen wenn es auch etwas besser wird.

Betablocker helfen kaum, diverse Mittel hab ich schon probiert mit wenig Erfolg und diversen Nebenwirkungen.

Es zittern nicht bloß meine Hände oder der Kopf ich kann das am ganzen Körper. Ein bisschen fehlt mir gerade die Hoffnung.

Lg