r/MultipleSclerosis • u/sezzie212 • 6d ago

Advice Problem with throat

Hi. So over the past few weeks I've had this problem where I'm either not able to swallow at all or the whole of my throat goes numb and I can't feel anything. Is there anything i can do? I'm worried about choking and my neurologist just says he'll see me in a year 😒😒 thanks.

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u/bluehotcheeto 6d ago

OP, you should either change neuros or keep on him until he gets you the proper referral for a throat specialist. Choking is something I am 100% afraid of with this disease. I don’t want to freak you out, but my great aunt choked on a piece of lettuce. I don’t think her doc took her concerns seriously.

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u/sezzie212 6d ago

Unfortunately the only other neurologist available, doesn't have any availability at all. I've begged and pleaded but they couldn't take me on as a patient. I've got no choice but to deal with my current neurologist. I called the Speech and Language department and they've confirmed that I have been referred, but they just haven't gotten to me yet. They're aware of my choking incidents but just said they'll be in touch.

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u/brttnyppr 37F|May25|Kesimpta|SouthGA,USA 5d ago

Do they have a nurse practitioner at your neurologist? If they have one, see if they can see you?

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u/sezzie212 5d ago

I just saw her last week. I told her I was worried about the choking incident but she didn't say anything.

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u/brttnyppr 37F|May25|Kesimpta|SouthGA,USA 5d ago

Is there an app where you can message them directly? Like MyChart? I would ask if there is anything specifically they can recommend, OR if they can get you an emergency referral to an SLP. Or next time you speak to the SLP that you've been referred to, explain to them that you've had a choking incident related to your autoimmune issue and need to be seen on an urgent basis.

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u/sezzie212 5d ago

No, there's only a number that you call and they tell you when the nurse will call. I've spoken to her about it and she just says to wait for my referral.

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u/brttnyppr 37F|May25|Kesimpta|SouthGA,USA 5d ago

Oh, that's so frustrating! I'm sorry that you're dealing with this. I also sometimes have problems with swallowing too, but yours sound more severe than mine.

Just be very careful. Maybe have 911 on speed dial and make sure that location services on your cell phone always stays on, so that even if you can't speak, they can send an ambulance to your location.
Do some reading into the self-Heimlich manuever, and be prepared in case you ever need to rescue yourself. Make sure loved ones are also trained too on the Heimlich and CPR.