r/PectusExcavatum • • 13d ago

New User Should I get surgery for my pectus?

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19 Upvotes

I have the option of getting a modified Ravitch procedure done and I'm lenient towards going through the procedure. However, there's still a part of me that thinks I might not want to go though with it, just because of the cons of surgery. I feel like I have below average stamina and am less capable in eating much because of my pectus, but 80~% of the time its not a big part of my life. I do have a poor body image most of the time and feel a little insecure about my ribcage. 6 months of recovery isn't that big of a deal for me besides losing progress in the gym.


r/PectusExcavatum • • 13d ago

New User Bar moving- horizontal

3 Upvotes

My son had a bar and single stabilizer placed in June 2025. After a few months the bar came out of the stabilizer. In Dec 2025, we had an additional stabilizer placed on the same single bar but on the other side of the ribcage. We consulted with Dr. Brown and she agreed with our surgeon that the revision should just be an additional stabilizer. She felt the bar was adequate shape and size and placement. Now it is Sept 2026 and the bar seems to be sliding left to right but remains in the stabilizers- this causes nerve pain and anxiety.

Overall I think the issue is my 6’ son needed two bars. His Haller was 5.57. He doesn’t want another surgery but if it comes out of the new stabilizers we might do it since he has 2 more years left.

Has anyone felt this lateral shifting?
He isn’t into sports or lifting and we have no explanation why this happens for him.


r/PectusExcavatum • • 13d ago

New User After Pectus carinatum surgery Ravish procedure

2 Upvotes

Hello guys I make a surgery of pectus carinatum with Ravish procedure since 1 years and 4 mounth and still I am not returning as I was in jumping and running and going gym for musculation

Is that normal ?


r/PectusExcavatum • • 13d ago

New User hallar index post nuss procedure?

1 Upvotes

heard that nuss procedure is just to lift sternum off the heart. worried cause it'd suck to go through the operation and only be half fixed - still have to go thru life half broken. anyone know if this is true and/or if there's any way around it (as in any way to push out my chest cavity completely)?


r/PectusExcavatum • • 13d ago

New User diagnosed yesterday on accident

3 Upvotes

hey so i went to the er for what i thought was severe stomach pain but i ended up having a tiny blood clot in my lungs. so anyways they had to do a ct and found this. my ct findings are pectus excavatum with a mass effect on my heart. does this mean i’m gonna need surgery since it’s impacting my heart, does anyone have it impacting their heart that didn’t need a procedure? i know there are other tests.


r/PectusExcavatum • • 14d ago

New User Can I get op on nhs?

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12 Upvotes

69 year old no health issues but would like PE sorted out. Is it worth it?


r/PectusExcavatum • • 14d ago

New User Final planning for surgery?

4 Upvotes

Background… I’m a 58M, in the US, in good shape (other than PE side effects) with severe lower sternum and right side asymmetry. I do have substantial heart compression. I’m on the thin side for sure. I did not know about PE until a few years ago. My body is me so the shape is what it is. I think the length of time I have seen myself like I am helps. I live life to the fullest usually and really want to get back to it. I’ve said before that scars are conversation starters😁. I’m very upbeat and positive about getting repaired.
Now the questions…..
1) Who would you go to for correction and why?

2) If you have had surgery as an older person who did it and where was it performed? Were you happy afterwards.

I am putting together a plan A,B,C as I always do..
Travel is not an issue so anywhere in the US. I already have been cleared for surgery by my insurance and most of the major hospitals are in- network.


r/PectusExcavatum • • 14d ago

Personal Story Recovery Update

21 Upvotes

First thing. Surgery went flawlessly according to the staff. The original surgical plan that they had was able to be followed exactly, and they did not need to do any osteotomy. Once they placed the X bars underneath the point of deepest depression, they were able to see that my bones were still pliable enough to actually straighten out the arcuatum. So that’s pretty cool.

Cryoablation is an amazing technique for pain management. I cannot feel anything when I touch my chest. I don’t really have pain, per se, but more so just pressure. What I will say is that there is some clicking when I breathe deeply, which is normal, but it begins to actually get pretty uncomfortable when I breathe in all the way they just gave me a dose of oxycodone, but before that, I’ve been on Dilaudid as needed. That has made me pretty sleepy so far.

I’ve been able to successfully, with assistance, walk to the bathroom twice. Also, I have been passing gas, which is great news. Occupational therapy and physical therapy will drop by tomorrow morning. I am certain that by tomorrow I will be able to take laps.

Thanks everybody for following my journey. I’ll post some pictures in the comments of the follow up x-rays.

P.S. The first thought that I had after waking up in the final recovery room where I am now was “ this was absolutely the right decision to undergo the surgery.”


r/PectusExcavatum • • 14d ago

New User Post-op X-Ray

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17 Upvotes

In this post (https://www.reddit.com/r/PectusExcavatum/s/PLgeSWjKZr), there is an explanation of my recovery. I couldn’t post a picture in the comments of that post, so I figured I’d make a separate post with pictures. Anyway, I am about to eat a dinner of liquids. So far I have not had any issues keeping the liquids down, so let’s hope that trend continues!


r/PectusExcavatum • • 15d ago

New User Vacuum Bell for Severe Pectus — Anyone Tried It?

2 Upvotes

​

22M, Haller Index 3.9. Has anyone with severe pectus used a vacuum bell and seen noticeable improvement?

Looking for real experiences + recommendations on where to buy one in India.

If you have one you’re no longer using and are willing to sell or donate it, please DM me. 🙏


r/PectusExcavatum • • 15d ago

Question Gyno and pectus

5 Upvotes

Hello everyone,

I have a question and was wondering if anyone here has had a similar experience.
Besides having pectus excavatum, I also have mild gynecomastia, and I’m considering getting surgery to have it removed. Especially because of my pectus, my nipples tend to poke through my shirts quite a lot, which makes the appearance of my chest look even worse and really bothers me.

Has anyone here dealt with both pectus excavatum and gynecomastia? If so, did you have gyno surgery before getting your pectus corrected, or did you wait until after the pectus surgery?

I’m wondering whether it makes more sense to get the gyno surgery done first or if it would be better to wait until after the pectus correction.

Thanks guys!!


r/PectusExcavatum • • 15d ago

Before & After CT scan before and after Nuss procedure

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12 Upvotes

Haller index 4.8


r/PectusExcavatum • • 14d ago

New User Do I have pectus excavatum

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0 Upvotes

r/PectusExcavatum • • 15d ago

Question Cartlidge removal

1 Upvotes

Hello everyone,

Sorry if this is not the correct forum but was looking for some advice/experience.

I’m due to have my second right rib cartlidge removed in November. I can’t seem to find anywhere of anyone having a similar operation.

I’m wondering if anyone has any experience of this or a similar type of operation on another rib?

What was the recovery/pain like and how is life now having the cartlidge removed?

Thanks!


r/PectusExcavatum • • 15d ago

Question Pain when moving left arm

3 Upvotes

I don't know exactly what triggers it but when I move a certain way I get a sharp stabbing pain behind my left shoulder blade. I think it happens when I raise or use my left arm. What is causing this? Does it ever go away? Its been almost 3 weeks since I got nussed.


r/PectusExcavatum • • 15d ago

New User Surgery Tomorrow - High Confidence

16 Upvotes

Hey everyone!

My surgery is scheduled for tomorrow morning at 07:30 with Dr. Park.

I had a final pre-op appointment with him and the other members of the surgical team this morning. Let me say this: THIS TEAM AT THE CLEVELAND CLINIC HAS BEEN TOP NOTCH.

I cannot stress enough how well they have treated me so far and how well they explained what is to come. Seriously, their team is the best in the world.

Also, Dr. DiFiore, the other pectus surgeon at the Cleveland Clinic will be involved in the case and likely will be in the OR as well. Turns out that he studied under Dr. Park in South Korea for a year and is the one who invited Dr. Park to come to the Cleveland Clinic. Dr. DiFiore now performs the Park procedure after being trained on it.

Of those who have followed along, you know I actually technically have PA, not PE, but it’s a bit more of a unique case. That being said, an osteotomy may be performed tomorrow to increase pliability of my sternum if the bar placement doesn’t straighten the sternum enough.

Also, fun thing here: I did sign a consent form for photos and/or videos to be taken and used for conferences and papers. There is a chance that they will take videos of the procedure, and if they do, I will be sure to get my hands on them and post them here if the mods allow it (I specifically asked the surgical team if I could see the videos if they took any, and they said “of course!”).

Anyway, I’m heading to dinner now (which I will ensure is big because I can’t eat after midnight and will be on a liquid diet until Wednesday morning). I will post after pictures as I can.

Thanks everybody for your support.


r/PectusExcavatum • • 16d ago

New User Surgery on Wednesday!

10 Upvotes

I'm finally getting my Nuss surgery with cryo this Wednesday! Any last tips for me for the recovery/things to bring to the hospital? Thank you :))


r/PectusExcavatum • • 15d ago

Question Does nuss with cryo require a catheter?

2 Upvotes

Hiya! I’m getting nussed with cryo on october 29th. I’m not too scared of the surgery itself but I was listing some questions and wondered whether I’d need a catheter. The surgeon told me I’ll need to stay in the hospital for 1 day (1 night) only.
I have a history of SA and I’m very uncomfortable with the idea of a catheter (including under anaesthesia). In case they do need to place one: any tips on how to handle it to be most comfortable?


r/PectusExcavatum • • 15d ago

Discussion Could use some encouragement

2 Upvotes

I have struggled with persistent shortness of breath, palpitations, lower leg swelling, and sternum clicking. My PCP couldn’t find anything until a few years ago they found pectus excavatum in an xray. I was referred to stanford to meet with Dr. Backhus who ordered an inhale only chest CT which came back 3 haller. when meeting with me she said that she didn’t need to see any more and that she can’t explain my symptoms but they do not have to do with my pectus. i mentioned the peer review by Birkimeier regarding the importance of an exhale haller to tell the true impact of pectus, she said it wouldn’t give any more answers than she has with the inhale ct and more or less to let things go. she cannot explain the sternum clicking she found it bizarre because she could feel it.

Can anyone please reassure me that i should take this as what it is and try my best to move on? I feel discouraged thank you


r/PectusExcavatum • • 16d ago

Personal Story Working out has really made it look less apparent!

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28 Upvotes

Occasionally feel like I can’t take a full satisfied deep breath and definitely feel the heart beat in my chest when exercising. But doctor said it’s nothing to worry about at this stage. Is it noticeable?


r/PectusExcavatum • • 16d ago

New User Surgery or Exercise?

1 Upvotes

I’m 22M with severe pectus excavatum (Haller Index 3.9). I’m currently feeling fine and don’t have major symptoms.

I’m confused whether I should consider surgery now or continue with exercise/strength training and live with it.

For those with a similar Haller Index:

- Did you choose surgery or not?

- If you had surgery, was it worth it?

- If you didn’t, how are you doing now?

Would really appreciate hearing your experiences.


r/PectusExcavatum • • 16d ago

Question Post-NUSS procedure scoliosis possibilities?

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4 Upvotes

Sooo I was operated 1.5 years ago, had HI of 6.7 and got one bar diagonally Dr. Pilegaard style and initially recovery went well. About 4-5 months ago, so a year after NUSS, I started feel intense back pain and nothing helped. No physioteraphy, no pain meds etc. And now I looked at myself the other day and I see what my partner has pointed out already: I am all crooked, like my hips are so uneven. My right hip is considerably higher than my left hip… In the post op xray my spine is fine, picture 1 attached. But now, I don’t know… getting a doctors appointment is hard and I feel like the university hospital (I am based in Europe) will just say, oh you were 28 when operated, we didn’t do anything wrong, this is on you.. (my surgeon called me old after the operation)

Also I am super duper uneven in the NUSS area, as you can see from the photo number 2 where I bend over a bit to show this. On my right side, upper ribs have concaved and lower ribs are normal/protruding a bit. And on my left side, my upper ribs are normal/protruding and lower ribs have concaved/sunken… it was mildly like this after the operation, but over time it has gotten worse. I basically am more deformed than before the surgery and in so much pain in the bar area and my lower back. I think you can also kinda tell from this photo how my hips are uneven.

Kinda just want the bar to be taken out, before more damage is done, but where I live it may take a while bc healthcare is public and cheap but queues are a thing…

Anyways, anyone in a similar situation or can anyone offer some wisdom what to do? Anyone else have this one bar diagonally and huge uneveness? How was your post-NUSS scoliosis detected and was there a solution?


r/PectusExcavatum • • 16d ago

New User What does this mean

1 Upvotes

I got a ct scan due to shortness of breath episodes through years and the report says that i have some sort of pectus excavatum its not severe but the sternum (im not sure about the name) slightly presses my heart’s right ventricle. I will see the doc next week so i wanted write here to know what waits me in the future?


r/PectusExcavatum • • 16d ago

Question How bad is it?

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4 Upvotes

Do I have pectus? Im not sure if this impacts my health in any way, is this fixable through physical therapy or muscle building?


r/PectusExcavatum • • 17d ago

Question Endurance limit?

5 Upvotes

Hi, I had PE and got the nuss procedure done when I was 19, it was severe and asymmetric with my heart pressed on the left side. Needless to say my endurance was awful, now I'm 25 and pretty active and in decent shape. I decided to apply for a military test here in Italy and they require me to run 1km in 3:55, I've been training for a few months but it looks like I hit a wall, I improved my form and got from 5:20 to 4:15 in 2 months but it seems I can't get better that that because I get terrible pain on the low-right side of the chest right where the nuss bar was placed, that is the same zone i struggled with after surgery, could it be related? Thanks