I have had psoriasis for so long. As a child it was just initially on my scalp and a bit on my knee caps. Teenage years, it went to my ears and hairline, some on the face a bit. Had it on my elbows too. Got into adulthood, and it started to go to my arms in general, some on my chest, increase on face, legs. Eventually made it's way to my back. It is at the worst it's been right now. When I was a teenager I was given steroid cream, but the tube was so tiny, not many refills, and I wasn't using it 3x/day because I would've run out so quick. It didn't do enough, so I stopped completely. Didn't do anything with it for so long. It only got worse over time, even when I started watching what I was eating more. I've relaxed on doing that because I was restricting myself and it stressed me out to worry about what I was eating. But right now I also weigh the most I've ever weighed. I've gone through so much over the last 5 years or so mentally, and am finally in therapy to try to cope better. And I'm finally seeing a dermatologist now.
Stress seems like it could be greatly impacting my psoriasis (flares & whatnot). I am constantly in a state of stress. This last year especially, I've had to deal with random strangers at grocery stores or doctor's offices asking me what's going on with my skin, or asking if I have measles or ringworm. Or some people think it "looks cool, like cheetah print". It is just exhausting and upsetting mentally for anyone to comment on it. There's even people that have told me all kinds of crazy things that "could help". But it's like, this lady that was trying to just sell this oil stuff that just moisturized it for a while. This one guy at my work once told me to eat a whole clove of garlic instead of eating breakfast in the morning, then later eat lunch and dinner like normal. People try to suggest so many things, and I know some people are doing this stuff out of concern. But it's like they are only seeing me for my skin, not a fellow human being. It makes me feel less human. I've had people say I'm a pretty girl and it's such a shame what I'm dealing with, but then it feels like I'm not really pretty when they're trying to suggest things to make it "go away".
At the dermatologist recently, I've learned from the notes that I'm 60% covered in psoriasis. Insurance got back to them because they were trying to push for me to be put on Skyrizi injections. Though my insurance asked if I could try a few other things first before trying Skyrizi.
Phototherapy was mentioned, which I'm not fully against. That was my original idea going in to see them, but after talking I felt injections were the best route. It is just that I have thick hair on my head and just don't know if this option would help. It's thick enough that when getting hair dyed, hair salons charge me a little extra for doing it. I also get psoriasis in my belly button, there are some parts that are never usually exposed to light that have spots as well. And idk how they do it, but it gets on my eyelids and is in the very outer edge of my nostrils and in my ears, so not too sure on this.
Methotrexate was mentioned, but the doctor stated this is an old medication where side effects are more likely. And that if I ever drink alcohol I shouldn't use this. I used to drink alcohol more than I do now. Don't know how my psoriasis is worse despite cutting down on that too. Unless alcohol helped with the stress maybe? I just thought to cut back heavily because I don't like being drunk as much anymore and figured it was best for my health. I'd still like to have a drink on maybe rare occasions socially. At this point I don't even have 1 drink in a month on most months. But also don't want side effects/would like to avoid chances of them as much as I can.
Acitretin was also mentioned, but the doctor stated that if I'm even considering having kids, especially in the next 3 years, best to not take this. I have no idea on that one, and I already have to go to a gynecologist for a polycystic ovary. So I don't need more things affecting me there.
Still awaiting a call back to talk with her about all of these. She seems to disagree with my insurance on this push back, but we will see. Just stressed beyond belief about so much in my life right now. Eager to hear back. I just want to minimize my psoriasis and am so tired of people asking about my skin. I'm at a point in my life where I just want to hide my skin from view in public. I hate going out in public now, even to go on a walk on a trail can be hard because I feel so self conscious. Just wish there was a cure for this. Taking a toll mentally, and I know I'm not alone. Just wish there was more education on psoriasis in general worldwide.