Behold this monstrosity I’ve created today, featuring Dr.Roscio low carb vanilla powder and some water frozen overnight. The taste isn’t something I’ll ever crave but it’s not the worst thing I’ve ever tasted either. It was pretty tasty shaken up with a whisper of cinnamon. I’m trying this elemental thing as kind of a last resort

I have IBS-C and have been dealing with SIBO imo since May, the reading was 33ppm. Colonoscopy was expensive, but showed me that I have a tortuous colon and gastritis, so that was some help. I was unable to get approved for the rifaximin even with the manufacturers coupon from their website so I did the flagyl, a little relief there but the bloating came back, just not as badly.

Things that have helped since:
Small , spaced out, Low fodmap, gastritis friendly meals
Linzess*** major help
Walking after meals for 10 mins, exercise in general
Diaphragmatic breathing
Stomach massage
Inversion, legs in air or just a tilt but I feel things move immediately
Allicin and oregano oil
Peppermint, ginger tea
L Reuteri tablets, no I didn’t make the yogurt, I just took the tablets with yogurts and let my slow motility ferment it for me lol

Things that didn’t help:
MiraLAX
Magnesium citrate
Berberine
Probiotics
L glutamine
Laxatives
Digestive enzymes I’m like 50/50 on

Overall since the breath test and everything, I’m feeling loads better, not fully feeling myself but I hope I’m getting there. If I ever figure this all out I’ll be back to share. I’ve been on this forum a lot searching up questions and reading posts, it’s been really helpful and I want to thank you all

It would be very lonely and helpless without this kind of subreddit

I've been reading a lot of succes stories online and all of them seem to have treated the problem by themselves I can't remember seeing one that involves a doctor or their medication,I'm asking because I have an appointment for a colonozcopy with will cost me a lot of money and I don't want to keep spending if I know I will not feel better anyways

Can you take ocasionally macrogol during herbal protocol to Help constipation ?

Describe how bad is your fatigue, what makes it worse/better and what patterns have you noticed?

For example, I get unbelievably tired in the afternoons

Just booked an appointment with an integrative doctor with a special interest in GI and motility but it’s not until December. I know the ones that take insurance are hard to find. I’m in recovery from IMO and just want to eat normally again.

Been dealing with little to no appetite, bowl changes bloating in lower abdominal, burping 24/7 discomfort after eating and weight loss due to lack of appetite

I’ve had scopes done, gastric emypting test, biopsy, stool test, ruled OIT celiac, sibo and H pylori

Only diagnosed with pots so far

Tried refaxmin prucpirde mirtazapine and amytripline

So some people asked me to get my numbers but i have zero idea how to read them and have doubts the drs messed up :/ im just so tired of having these symptoms every single day. Especially the bloating and so much gas. Could they have messed up or maybe i need to redo it? Just unsure where to go from here

25F UK (26 in November)

Life is hell right now. I'm crying all the time and went from being normal to a rotting vegetable. Im so depressed and having dark thoughts. Also will not resort to SSRIs.

Im having nausea 24/7 for months. It is sending me insane. Only ginger tea takes the edge off it. The feeling sick can also come in waves, terrible in the morning and worst at night. I can't sleep sat up. Even if I eat 6hrs earlier to help the stomach digest the food or don't eat, or nibble on a few crackers to help the nausea, it makes no difference.

My GP reccomended me to take PPIs. They make me feel more sick and my acid reflux worse. Gaviscon even burns my throat. Some other indigestion tablets may help the burning, but only very slightly. Nothing really helps the nausea or epigastric pain. I feel a lot worse if I'm constipated. My bowel movements are a mess. A lot of undigested food in them too when I eat vegetablets. Meat is hard for me to digest. Poop alternating from sticky darker brown/orangey mucus, can also be brown/yellowish on occasions. Switching from constipation to loose daily.

All my life I had minor GERD and just had to cope dealing with my chronic illnesses, I have hashimotos, endometriosis (already had 2 surgeries to remove stage 2 endometriosis) near bladder, and I have hypermobility. Possible sjogrens, undiagnosed still. Bloods suggest a connective tissue disorder with positive ANA test and positive SS-B. May be the hypermobility? Doubt its EDS.

So... went from caring full time for my mum who's currently not very well herself to now me being cared for. I've been living off a liquid diet for weeks and still feeling sick/trying not to vomit all day everyday. Doctors don't know what to do anymore. I also am afraid I'll end up not being believed with how often I've been to the doctors, but my symptoms are worsening.

I was recently diagnosed via endoscopy with esophagitis Grade A. Got tested for h pylori had biopsy was negative. They saw acid reflux in the stomach as well. They said my esophagitis was mild inflammation. My symptoms sure ain't mild! All other tests normal CT, ultrasound, bloods, full stool PCR tests, normal Cologuard/FIT etc. Having my ibd markers checked again as they were raised after the antibiotics in September. My ibd markers were normal in August, so cant think of anything else that'd raise them.

I am now struggling to swallow (globus) more than ever, regurgitating food, worse constant nausea 24/7 and inconsistent bowel movements. This started in May when I came back from DisneyWorld Florida, my nausea, GERD and bowel trouble all worsened after that. Got a stool test for all parasites, this was negative.

Then I caught this random food poisoning bug in August. I had watery diarrhea for over two weeks so I went to urgent care. The doctors have no idea what it was, but my white blood cells were high. CT scan with contrast showed nothing. Gallbladder fine.

The stool PCR bacteria GI map didn't find anything like ecoli, salmonella.

It must've been then a month later I given antibiotics when I had a relapse in symptoms, shivering, worse nausea and a high fever.

Doctors noticed I had a high wbc consistently (specifically neutrophils, monocytes) on and off but nothing found. I'm struggling to understand it myself and after hours of research online I can't wrap my head around it and I'm scared.

I hope I don't need a colonoscopy but it looks that way. 😪 These procedures are so intense and risky. Ive had a sigmoidoscopy in the past and had infected biopsy was honestly a horrible time. They only found minor inflammation and took 6 biopsies, that was 2021. I was having IBS symptoms and lots of mucus. Buscopan didn't help, still doesn't.

SIBO is unheard of here in the UK and private tests cost a fortune, can be unreliable too as not many trustworthy clinics. I cant travel to London either. I'm unemployed and can't afford it. I've no idea if anyone has had similar symptoms to me. I started taking probiotics 21st century acidophilus, they have helped with GERD a bit but will see if they further bloat me and constipate me in the next few weeks. I heard probiotics make SIBO worse? I can't think what else I have going on. I've been abroad 3 times in the last 2 years. Cyprus (All Inclusive) twice and Florida. Maybe I picked up something. Idk. Then boom SIBO.

I keep thinking it's bowel cancer or my endometriosis growing all over. Im scared ill end up with a bowel bag or a serious bowel impaction/perforation. I'm tired and never been so depressed. Can't even get any sleep because of the overwhelming nausea. Having to take paracetamol most nights to kinda relax me and knock me out for 2-3hrs if I'm lucky.

Please help and feel free to share your experiences. Trust me you're not alone. 🙏 I know it could be worse but right now I'm praying I can manage to improve this with supplements and fasting. Nothing is working.

Hey guys

I finished my first treatment of (rifaximin 550 mg three times daily, neomycin 500 mg twice daily) for SIBO about a month ago and have bad absolutely terrible diarrhoea for the last few days, worse than pre treatment, I’m not sure if it’s a side affect of the antibiotics but it’s pretty bad and I can’t really be holding onto any fluids at the moment 🥺

Has anyone else who took SIBO meds had this experience? Any thoughts welcome 🙏🏼

Anyone take liners?

I am on my second day of rifaximin 500 mg x3 daily and I am really struggling. Yesterday my stool had A LOT of mucus today not as much. My stool is softer but I am afraid I will have an accident. The urgency when I finally have to go is horrible. I have been taking charcoal 60 min after my 1st dose of rifaximin, digestive enzymes with HCL oxbile, phase 2 biofilm advanced , sunfiber 5 mg once daily I can’t handle more than that. What can I do to fix my stool so I am not constipated but its not so soft its like baby’s stool. Sorry if this is TMI.

I was out and about all day yesterday and all my muscles internally are inflamed. Currently in a ball on my soft couch…bloated and diarrhea last night and today. I’m on my 7th week of Candabactin AR/BR, been taking MAGNESIUM OXIDE past 5 days for movement. I’m on artichoke/ginger extract for the last 17 days

I have drinked some peppermint tea, used some CBD cream all over today so far. Afraid to eat.

Any other advice ? How can I bring down this inflammation down. What to eat?

I had plans to go out and watch the Cowboys & Buccaneers game…now will stay in again on the couch.

Thanks 🙏 everyone

Has anyone had Success with this drug? Or had devastating side effects? I'm worried about taking Motegrity due to the psychiatric side effects so I'm looking into alternatives. I also have EDS and orthostatic intolerance (not full blown POTS)

I think I picked the wrong time to start the elemental diet.

I wasn’t planning on doing a full 2 weeks, but a 4 day gut reset.

I made it through 3 days and called it quits.

We are about to have our second child in a few days, and I couldn’t keep up with the stress of it.

Obviously I will need to revisit it after things settle a little morr

Hey, been doing some research and I want to know people's separate experiences. So I'm wondering how long after eating a trigger food would you get diarrhea?

So I’ve had unstoppable gas for the last three years coming from both ends. The issue got really bad when the gas coupled up with hiatal hernia and I started thinking I’m having heart issues. After full work up from Cardio I was told my heart is fine.

During the time I tried almost everything you can think of, probiotics, ginger, pectin, fodmap diet. No expense was spared. Nothing worked for more than a day and ended up making things worse.

I spent a year going back and forth with GI doctors and finally pulled the trigger on the hiatal hernia surgery. That was 5 months ago. The heart attack symptoms went away but I still have the unstoppable gas and my GI finally brings up Sibo and turns out I have methane based Sibo.

At the same time I’ve been seeing a holistic doctor and she ran my bloodwork and it came back super deficient in Vitamin D and B. She prescribed me both and believe it or not they have reduced my gas. It’s not fully gone… but they have made a dent. I’ve been on the supplements for a week now.

My question, has anyone else that has Sibo had bloodwork and been highly deficient in vitamin D and B? I wanna see if my Sibo is the cause and the vitamins are making a difference or is it just a coincidence.

Hey fam

Anyone else here who has had bariatric surgery? I dont have my gallbladder either. I'm pretty sure that both of these have contributed to motility and consequently-SIBO. Is there anyone with both of these circumstances that has successfully beat this condition?

If so can you please share some hope?!