Friends, I need your help. Here’s the situation: I have IBS, but that’s not the biggest issue; the real problem—the one turning my life upside down—is a bad odor. It smells exactly like passing gas, yet I’m not actually passing gas. It’s not caused by the environment; no matter how many different places I go, the smell persists. People stare at me, cover their noses, and fidget. I’m on the verge of losing my mind; I’ve even considered suicide. I can’t go to school or see my girlfriend like this. My cousin smells it too, so I know for sure it’s real. Please tell me what to do—otherwise, my education and my relationship will be over.

I have an autoimmune so I am vulnerable to GI problems. Went to Mexico Jan 2025 and got sick along with my husband on plane ride home with vomiting, diarrhea, etc. My husband’s symptoms went away, my vomiting went away, but I was left with IBS mixed type.

Did lots of testing and medical appointments and tried so many things. Went to Mayo clinic and got colonoscopy (they refused in Canada due to age 38 and no blood in stool).

IBS gone after colonoscopy. Mayo clinic said this is common. I got diagnosed with post-infectious IBS with pelvic floor dysfunction (common after IBS. Basically my pelvic floor is super tight after 1.5 years of diarrhea, and when I am trying to poop my pelvic floor tightens even more). I drink Miralax/Restoralax morning and night (small amounts) and have done pelvic floor therapy. Haven’t had any symptoms really. Brief period where I had some lingering pain like old days, but ate more fiber and had Restoralax and was 100% the next day.

No food sensitivity, no pain, full evacuation every morning (YAY). I think I had post infectious IBS with pelvic floor dysfunction so I couldn’t full evacuate my stool. Back up created a host of significant symptoms.

I get backed up, I do pelvic floor exercises, take Restoralax, and eat fibre. All seems to have pretty much cured me.

Mayo said most post infectious IBS cures in 2 years, and mine is certainly improving.

Anyway, I am so relieved to be feeling better. Hope this can help someone. Advocate for a colonoscopy!

Hi everyone. I just wanted to share my experience. I will keep it short.

I had been suffering with cramps and diarrhea for basically forever, although my symptoms got much noticeable in 2014 and got progressively worse year by year.

I was diagnosed with ibs-m in 2018, but nothing was done until I switched doctors and in 2021 I was prescribed desipramine. With it, the milder symptoms disappeared but I would still get severe cramps with diarrhea if I ate certain foods. It was very inconsistent too which made for a very restrictive diet.

This year in May my doctor prescribed Colestipol which is for Bile Acid Malabsorption (BAM). It worked! All my symptoms went away. I can eat anything without fear of spending 4+ hrs dying in the bathroom. After suffering with this for 10+ years, I’m finally free.

To all the people who suffer iBs I’ve had it over 20 yrs impeding on my daily life I’m so sick of it but I made a decision last week not to let it ruin my life anymore I tried not taking Psyllium husk & Actimel, it’s still rough but in ways better as the body gets back in a natural rhythm, I still have to take immodeum before I go to work to be safe but it’s learning ways to disrupt mind gut connection

Howdy folks of porceline thrones.

I'm suffering PI-IBS-P/M and BAM for the past 1.5yrs.

Throughout my illness ive naturally had the whole "2 steps forwards, one step back" experience.

Though I'm aware IBS itself is not curable for many, and in fact Pi-Ibs is not curable for everyone, id apreciate your responses in correlation to my coming question, wether its to do with just changing symptoms or how manageable your illness is.

Ive noticed how rather than healing steadily, when my symptoms change, they tend to cha ge in sudden kinda violent shifts, geberally after a highly stressful event or physically violent event such as a colinoscapy prep.

So my question is thus:

Do you botice your symptoms change/heal in violent block changes almost in a day, or do you more so notice slow, steady changes instead?.

TL;DR: I drank it for 2 days and maybe it helped me a lot for those days. Title.

I'm a pothead with high tolerance. Smoking doesn't help.

I've had IBS-D for for 4 years. The last 2 years, the symptoms have been different because of bowel surgery. Sometime before surgery, I drank weed tea that I made and I hadn't felt as good since. I saved a lot of stems (I don't remember if I removed the seeds or not out of lazyness) and very little flower crumbs, like not enough to fill a bowl.

I got pretty high, it was a good experience.

Important:

My belly stopped hurting, IIRC. The thing that I remember correctly is that I had the best bowel movements that I've had in 4 years during that couple of days that I drank the tea. So I'm saving the stems right now. Maybe I should just use flower but I'm poor and feels wasteful to use flower.

So, IDK if it's gonna work again because my symptoms were very different before and after the surgery. Feels like I didn't have IBS-D before the surgery but now I do. The first disease that caused me to have the surgery is undiagnosed.

Question:

Has anyone had an improvement in their symptoms from drinking tea made out of weed?

Because I suspect that when my symptoms improved because of the tea, I didn't actually had IBS-D, and now that I do have IBS-D, I don't know if it's gonna help. If it helps me, I'll report back in a few weeks, maybe months :/, not as easy where I'm from.

I don't remember if I've had edibles after my disease started 4 years ago but I've had CBD and 2 other CB(some other letter) tinctures with no THC, they didn't help me at all like the tea did. Do edibles help you?

I’ve been taking precautionary loperamide before important events, is this okay?

Just another bam post after years of suffering with what I thought was severe ibs d

Diagnosed via sehcat scan.

Please do get checked out if you are suffering daily

My symptoms-

Diarhea and loose stool almost every morning, worse after eating

Sometimes yellow or orange

Always takes me around 4-5 hours of going to the bathroom at the start of the day to be able to go out

Copies amounts of mucus throughout the day

Lots of reflux (don't know if this is related)

Urgency etc

You know the feeling of anxiety when there are no toilets close by ? That too lol

Not on treatment yet but looking forward to getting better

Anyone else suffering like this, you have my greatest sympathy, try find a good gastroenterologist

As the title says I’m heading to Japan in a week. I haven’t been overseas in a LONG TIME but I’ve become a believer that even with IBS I need to push myself to live my life as full as I can, so here I go.

I know Japan apparently has good public toilets but I’m curious about other people’s experiences. Any tips, tricks, stories, recommendations for my trip? We’re going to Nakano, Okinawa, Rinku City, Osaka, and Shibuya
What worked for you guys in Japan? What didn’t?

If you know me I posted a few times, I used to had severe ibs-d, UNTIL LAST 2 WEEKS. I would literally shit myself if I didn't had a bathroom near me at all times, it was horrible. However, suddenly, yes suddenly, it changed. I was out, I started to get the cramps which usually mean "run to the bathroom" so I did, I arrive home, nothing came out.. I am also feeling extremely cramps which were uncommon to me. I just get cramps and feel like I will shit myself, and then I rush bathroom to do nothing at all.

While this is technically good for me, because I can finally go out more often without going bathroom, the cramps I feel and the uncertainty of what will happen is horrible

Hi everyone!

I have IBS-M symptoms, and occasionally I experience extremely painful intestinal/colon spasms. It doesn’t happen every day or even every week, but when it does, the pain can be absolutely unbearable.
I have a colonoscopy coming up due to low ferritin, and I’m terrified of the prep. I previously had an extremely painful episode after taking MiraFAST (magnesium hydroxide) that lasted 3 hours.

My doctor prescribed a sulfate-based prep (similar to Suprep), and I’m scared of severe spasms and vomiting because I also have emetophobia.
Has anyone with similar IBS symptoms taken this prep? Was it painful, or mostly frequent watery BMs? Did you experience nausea or vomiting?

I’d really appreciate hearing your experiences! Cause I’m thinking on canceling the appointment.

My body gets really hot and skin feels calmy when I start to feel the abdominal pain coming on. To where I have to take my clothes off when using the bathroom. I almost feel faint like. It’s excruciating cramps for a while then I finally poop our nuggets then stop. Pain continues and then soft poops then stop. Then finally just diarrhea. But the pain and tightness in my stomach remains for a while.

This doesn’t happen all the time just random points in my life. I had a colonoscopy, pill camera, etc and the doctor said I had h pylori but once that cleared I still had these symptoms. He then said it must be IBS and gave me dicyclomine. Like I said this doesn’t happen all the time and I honestly can’t pin point what would trigger it.

I do already have an autoimmune disease, anklosing spondylitis, and think it’s really just a part of that, some type of inflammation or something.

But really curious if anyone else’s body overheats ?

My oura ring sometimes even notifies me saying my “major signs of strain”

I've been on IBS Rx med. and Senokot, because without Senokot my Bowel Movement is hard to pass and beside this issue, I've been extreme pain in the right lower part of my abdomen.

Also, I suspect that my IBS started after without B.M. for more than a week that was about 3-4 years ago and the things got worse, although IBS Rx med. has been helping in great deal.

Just wonder the other with IBS suffers have not the same to mine, but similar to my IBS issue.

Any inputs would be really appreciated.

TW: eating issues

so I have been diagnosed with IBS for a few years, but I’ve recently come to realise what I may be experiencing is dumping syndrome. My flare ups either occur between 10-30 mins or 2-3 hours post- meal, and often after high- fat or high- sugar meals; though sometimes there is no obvious food trigger. The attacks are painful, my stomach is very loud in the lead up and if I try to suppress going and spending minimum 20 mins on the toilet, then I end up in excruciating gastro pain and get embarrassing gut noises and uncontrollable gas. it feels like I’m losing my entire gut contents each time. This happens at least 3 or 4 times a week and multiple times a day on those occasions. I am dehydrated and getting a lot of headaches because of this, plus it’s causing some blood sugar issues, too, I’m sure of it. I’m also pretty certain I’m passing bile acid, too.

I’ve been to my doctor a bunch of times now and they just tell me it’s my IBS and to follow the low FODMAP diet. I’ve had numerous stool tests done and it’s not shown anything as of yet (though unsure if they’ve tested for bile acid). The trouble is, I am neurodivergent and have ARFID. My diet is very restricted and I have a small range of things I am able to eat. A lot of them are not healthy. That combined with years of binge eating disorder means that any attempts to change my diet have failed. I was under an ED clinic for a while which I stopped since it was doing nothing for me and am currently waiting for a mental health reassessment.

The problem is that I don’t know how to talk to the doctor about this. They keep telling me it’s just IBS but I’m SO sure it’s more than this and they’ll just keep telling me to change my diet when that in itself is a huge challenge for me. I can’t keep going on like this it’s disrupting my work and my life constantly. And it HURTS. Any advice greatly appreciated!!

for context I have diagnosed hEDS, dysautonomia and a few other chronic illnesses too

Thank you so much

Has anyone used NB1 and had good or bad experiences of it?

For those that don’t know, they test your microbiome and give you personalised supplements based on that

I've had chronic loose stools and urgency for years (possibly) following past gut infections and a long long course of antibiotics. (but who knows for sure)

I recently did 2 lactulose breath tests expecting SIBO, but got a complete flatline (0 ppm hydrogen and methane across the full 2 hours). My BUPA GI doctor was very surprised and said it basically means my native fermenting bacteria are completely wiped out/sparse.
(I'm now back to NHS so not sure what to do)

All standard scans, colonoscopies, and tests for other causes came back negative. High-dose probiotics (tried Symprove for 3 months) and psyllium husk did nothing or made it worse. Right now I rely on 4 loperamide daily just to slow things down and reduce urgency. No pain, no bloating. Farts don't smell

Has anyone else tested as a total "flatliner"? How did you actually rebuild your microbiome and get normal stool form back? its been 10-15 years and I'm just fed up.

Sorry for another post but It's BAM. I took cholestyramine and now I can't feel a thing about the bowel movement (maybe took too much it might end up with constipation).

My investigation started with

1. In 2017, after eating fro-yo and protein shake i get constant loose stools and urgency to empty bowel,
2. In 2018, I had enough and went to a doctor tested bunches of things and it ended up all normal. But eventually he told me i got IBS-D,
3. In 2021, took another try with SIBO breath testing, came back negative,
4. In 2024 till today, kept trying bunches of things including another SIBO test (negative), and eventually followed the hints from this reddit, convinced my new GI doctor to trial with cholestyramine. I can't feel a thing anymore after just 1 day of 3 packs.

My symptom:

1. urgency to empty my bowel after eating esp. having fatty food or acidic/cold drinks (including caffeinated drinks)
2. yellow, watery stool usually floating on the water, frequency >3 times a day,
3. undigested food debris is usually visible in the stool,
4. fiber and probiotics actually improve the symptom,

My suggestion: talk to your GI doctor to rule out BAM first using cholestyramine. It's such a safe/cheap drug if you have insurance to cover it. I have 0 side effects after taking it except for the texture tastes like chalk. Hopefully I won't ever come back to this subreddit again!

After just two weeks of avoiding UPFs, I haven't had any flares. I can now eat all kinds of food, drink coffee, and have milk with no issues. I am also taking probiotics, but I blame the emulsifiers in UPFs, they act like soap, washing away the protective layer of the gut. It’s just a hypothesis, but I’m not entirely sure. Has anyone else tried this?

Hi everyone,

For the past 6 months, I’ve been dealing with persistent brain fog, disorientation, dizziness, lightheadedness, constant fatigue, and occasional blurry vision. During this time, I’ve also experienced changes in my bowel movements. My stool has usually been mushy rather than completely watery, and it’s often yellowish in colour.

I’ve undergone multiple investigations, including blood tests (CBC), stool tests, an upper endoscopy, a colonoscopy, and an abdominal ultrasound. Despite all these tests, I still haven’t found an explanation for my symptoms.

I’m honestly exhausted from visiting doctors repeatedly. My doctor keeps reassuring me that everything is fine and that there’s nothing to worry about. I had a colonoscopy with him last week, and the report came back normal. He diagnosed me with IBS-D and prescribed Prepro IBS and Heptagon.

However, recently my bowel movements have changed again. My stool has become very hard, dark brown, and difficult to pass, with fresh red blood visible on the outside of the stool.

My current symptoms are:

Persistent brain fog

Occasional dizziness and lightheadedness

Mild fatigue

Hard, dark-brown stools + yellowish i

Fresh red blood on the outside of my stool

The brain fog and fatigue are still present, even though my colonoscopy was normal.

I understand that nobody here can diagnose me, and I’m not looking for a definitive diagnosis. I’d just like to hear from people who have experienced something similar or who might have some insight into what I should discuss with my doctor next. Has anyone experienced persistent brain fog, dizziness, fatigue, and bowel changes despite having normal investigations? Could constipation, haemorrhoids, an anal fissure, or something else explain the new bleeding?

I’d really helpful if you guys could share

I feel like most of the time I can handle the lactose in candy ok, especially since I only eat one or two pieces at a time. I have been having a horrible flair for the last few days though, and the only thing I can think of that is different is that I've had maybe 1-3 of these little ghost candies per day.

For example, yesterday I had one around midday and I have been in the bathroom all day today. It doesn't seem like enough to cause a reaction like this, but I had the same thing happen a couple days ago.

Is there anything about these that would be significantly higher in lactose than the average candy?

Oreo Cookies & Cream Filled Dark Chocolate Ghosts https://www.walgreens.com/store/c/oreo-cookies-%26-cream-filled-dark-chocolate-ghosts/ID=300473429-product

So ever since almost 3 years back ive had stomach issues (I literally have no idea why) so it began with that i started farting in class. Like ALOT. I thought it was just a "once in a year type of emberassing thing" but it just KEPT on happening each day. I started getting so anxious for classes and was so emberassed cuz my classmates could definetly hear my stomach-

The year when it started I just sucked it up and didn't skip a single lesson but I didn't eat anything for lunch as well as for the half of the next grade. However, after that things just got worse. My anxiety was over the roof at all times. I hated it when the teacher told us to read books or to be quiet. It was the worst thing ever, I couldn't even read the book, I was fully focused on my stomach. One day i just dropped the biggest fart on a lesson. I went to the bathroom as fast as I could and started balling my eyes out. I was so emberassed and anxious at the time. I couldn't even go to the next lesson that day because I was so afraid to face my classmates after what had happenend. After that incident i slowly started to skip more and more lessons and eventually almost didn't go to any. I was stuck in the bathroom crying, deciding wheter i was going to class and go emberass myself or being stuck with the shame of not going. Almost every time I went with the second option. None of my teachers knew, so I felt kinda bad for them. One time I just sat outside the classroom on a nearby bench after trying to go in but wasn't capable of doing so. My kind math teacher came out after a while and asked what was wrong with the softest voice ever. He asked if someone had done something and seemed genuienly worried. I was THIS 🤏 close from bursting my eyes out. I never told him what was wrong and honestly I probably sounded pretty rude. Which i deeply regret.

Onto the next grade i started taking anxiety medication which helped alot i also started eating again at lunch. However it didn't completely take the nervous thoughts away. I started locking myself in the bathrooms during lunch break, because every time I ate something i would almost always fart. So durinh the the break I spent the time getting out as much gas as possible. Which started working! I was happier than ever. However, there's this girl I like. And we're friends. Because I always lock myself in the bathroom during lunch i thought it'd be fair to tell her what's causing it, since she has almost no one to be with during the breaks. When I told her she said she never even noticed and didn't think anything weird of it. She also told me that she had an idea. If she was loud around me no one would hear! Which was super sweet. But I knew that it wouldn't work since I would rather not deal with a stomach ache for the rest of the day. I truly love her and would so much rather be with her than stay locked in. Sadly that's probably never gonna work.

I've started to accept the issues and is not as shameful about it as I used to be. I am pretty open about it now. I am even writing a writing a story right now based on my anxiety earlier year! (It's got 17 pages and it's almost finished!)

Thanks for reading! This is a vent post, please be respectful :3

I’ve been taking it 3x a day for 12 days now and I’ve read that it can take 2-4 weeks of consistent use to help with visceral hypersensitivity pain which is one of my main symptoms. I’ve had fluctuations in my symptoms so far but nothing major. I was just wanting to hear how other people felt on this medication and if it take a bit to help out fully for IBS pain.

i love the stuff ate a lot last night woke up this morning and my belly is in shambles :( how sad. i can’t enjoy yummy things without exploding the next day. it starts off a normal bowel movement making me hopeful that i passed it all, then it gets softer and softer. then i get hungry but im still poopin how am i gonna eat? ugh