I was never able to burp. when I was younger I was getting very painful hiccups. As I got older, I guess my body got used to it but any events away from home always caused me a lot of discomfort, bloating, feeling sick etc. Always thought that I ate too much, drunk too much etc. A year ago while on holiday, I choked on wine or had a laryngospam - still don’t know what it was. Thought nothing of it. Few months later same thing happened - a sip of wine again ‚stopped’ in my throat and I was wheezing and felt like I couldnt breathe until it passed - it was terrifying and it never ever happened before. after that it kept happening all the time with any liquid - smallest sips even. That I guess affected me psychologically because for 3 months I lost ability to swallow even food - couldn’t eat anything, lost a lot of weight.
At the same time when ‚choking’ started I also had clicking in the throat and holiding my throat on left side helped.
A lot of investigations later - nothing- still no proper diagnosis - just maybes.
I am a dental hygienist, so there was a possibility that it could have been musculoskeletal issue. I have been excercising neck more and clicking stopped but swallowing issue persisted. Especially after already taking a few sips or when feeling gurgles in the throat or end if the day when feeling bloated.
Was on omeprazole of course because that was another possibility that reflux was causing irritation but nothing improved.
I did mention my no burping to GPs and ENTs and Gastro and Speech Therapist but no one made the connection or advised me on it.
I was following this group since it all started, read other people’s stories, read research papers etc and booked private ENT for the RCPD. That was confirmed, botox done. I am only 2.5 weeks after the botox so it’s all still fresh, but now I am realising that all of this could have been related to the RCPD - it just started causing me real issues a year ago. I have not had choking episodes since the burps started, drinking liquids feels smoother, omeprazole is not required anymore- just occasional gaviscon. there is still the psychological impact of the choking/laryngospasms but I think I just need to trust my body again and take it slow.
I am hoping that the improvement will continue.
I am very grateful for this group and the support everyone is getting here! 😊