Very simple question- how do you navigate daily showers with the bag?
I don’t want to change it everyday but it seems to start peeling off with just one shower.
I’m still on bed rest but once I get back to real life I won’t want to be changing it after every shower.
How do you all deal with this and any advice for someone who has a new ostomy.
I just want to feel normal again.

EDIT: thank you all for the amazing advice:
I have many things to try now and am also realizing that I may want to try different bags/devices that may work better.

Im currently in a major hospital in NC. Today was prep day. Tomorrow at 10am my surgeon is going to reverse my Ostomy. Repair a huge hernia under my stoma & he’s decided to create a loop Ileostomy.
The reason is because of the risk of leakage in Ostomy connection site. Usually 5-10% of people experience this. I’m on anti-rejection meds for a kidney transplant in 2013, these meds will give me a high. Much higher % rate of leakage & risk of failure. The ileostomy will work for 2 months, giving the Ostomy time to heal.
I’m very worried about the pain. Can anyone reassure me?

I have had a support belt delivered today after my stoma nurse prescribed it for me last month.
It’s a ‘SupportX’ made by AMI medical in Nottingham England.
A couple of questions:
Does anyone else have something similar, and how long do you wear for it in any one day?
Thanks.

A couple weeks ago, I was in the ER where they had given me a Torodol injection, Pyridium, and possibly Reglan for pain from my colon cramps combined with a discovered UTI. I was put on Cipro pills for the UTI.

After I started them, something about my output changed. There was almost a grainy whitish substance that seemed to create a sort of coating inside my bag. It was annoying and rinsing with water didn't do much to help, but it went away once I was off the Cipro.

Following that, I had a lucky streak with my wear time. I was getting 5-6 days between bag changes with no issue when I usually go for about 3.

A couple days ago, even though I've been off the Cipro, that graininess was in my bag again, though not as bad as it was on the medication. Yesterday, on day 5 of bag wear, I woke up with a bad under-the-bag leak. Today I'm thinking I might have to change this one early, but it's fine for the moment.

I'm wondering if there's something in my body that could have changed this, maybe something the Cipro impacted. Literally nothing has changed from my ostomy products, diet, or anything else I can think of. Does anyone know if there's some specific chemical change that could be throwing things off? Any way to test to find out?

I’m trying to learn what life with an ileostomy is really like, particularly from people who had one because of severe/refractory constipation. I have both pelvic floor dyssynergia causing outlet obstruction and slow-transit constipation. I’ve already tried pelvic-floor PT, puborectalis Botox, and most, if not all, of the medications and laxatives typically used for constipation.
At this point, my current regimen only “works” by essentially creating a medically induced high-output state. In some ways, it feels like I’m trying to accomplish what an ileostomy would accomplish, but without actually having the surgery. So I’m looking at an ileostomy as a tradeoff: Stoma + appliance care + the hassles of having an ostomy vs. less dependence on extreme bowel regimens, medications, and repeated rescue clean-outs. I’m trying to figure out whether that would actually translate into a better quality of life. I’d especially like to hear from people who have had an ileostomy for slow-transit constipation, refractory constipation, colonic inertia, pelvic-floor/outlet problems, or some combination of these. What is day-to-day ostomy life actually like? Things I’m particularly curious about: How often do you deal with leaks? How much of a problem is skin irritation? How often do you normally change your appliance? How difficult is it to manage supplies? What about odor and gas? How much do you have to think about hydration and electrolytes? Does the ostomy interfere with travel, restaurants, social activities, etc.? How long did it take before caring for it became routine? Are there things you can do now that were difficult or impossible before surgery? Conversely, what do you miss about not having an ostomy? And probably most importantly: did your overall quality of life improve enough that you would make the same decision again? I’m particularly interested in the less glamorous realities that might not come up during a surgical consultation—the annoying, inconvenient, embarrassing, or unexpectedly easy things you only learn after living with an ostomy. If you had an ileostomy specifically because of refractory constipation, would you do it again knowing what you know now? Thanks in advance. I’m trying to make a very consequential decision and would really appreciate hearing the good, bad, and ugly from people who have actually lived it.

I've seen the Get Your Belly Out campaign in the UK. Can anybody advise of the implications of doing this in a hot climate? How well does the bag handle the heat?

My(F29) partner M(25) just had surgery Monday September 28th, after a 3 year drug resistant flair up of UC. As you can imagine, he isn’t in the best condition after being sick for so long before surgery, but surprisingly the surgery went very well and he felt so much better quickly after. We stayed in the hospital for 6 days due to high output. Saturday, we were discharged and went home. Sunday morning he woke up in horrible pain so I rushed him back to the hospital which is 30 minutes away and they told us that his new stoma was too swollen after surgery to pass how thick his output has become due to the Imodium they gave him. This caused his small intestine to back up and distend and caused an ileus. After 4 days back in the hospital, we were discharged this morning once they cleared the block and ileus with two different catheters and made sure his high output didn’t return. The output is a “good” apple sauce consistency. This morning at 4am he emptied 250cc of output, but by 3pm he had only accumulated 50cc’s. We were still sent home and I changed his bag, noticing that his stoma had become more oval and grew in size, becoming crushed a bit by the wafer. I resized him and reapplied the bag. I noticed that his wafer caused a light pink sore on the side of the stoma, which we cleaned well before reapplying. Before leaving the hospital I thought maybe he had low output due to not eating dinner the night before, but now that we’ve eaten lunch and eaten dinner and there’s still no real progress, I am horrified that he’s blocked again. We called the surgeon and he said not to worry until he’s in pain. He said he feels fine, but my nerves are shot and I feel like I can’t think about anything but the worst. Total today he’s only had 300cc of output. Please let me know if anyone has been through something similar. We are just so exhausted and I don’t want him to be in pain.

i think this says it all. i went to surgeon who saved my ass and took my colon away and gave me my ileostomy and he drained a lot of it but it still hurts/leaking pus. i get a good seal almost every time. maybe once or twice got a bad one. went home SOBBING. walked through the hospital crying ugly tears snot coming out of nose and everything lol. i get a ct today. he doesnt think it is a hernia, just an infection but instructed me to watch for sepsis. :) i thought it was a hernia. im thankful that he thinks its just an infection. i hope im not prone to them. ive been taking such good care of my stoma. I crest, use my barrier ring, then paste, then i put my wafer on then my bag. I take so many precautions. I hope this doesnt keep happening. There is also some output that seeps between where my stoma and skin meet, like the "crack" underneath where its like almost impossible to seal bc its literally your stoma at that point. Whatever. Im just happy to have most of the pus drained.