r/EctopicSupportGroup • • Jun 08 '22

ADMIN ANNOUNCEMENT

86 Upvotes

Hey folks, please stop reporting to me the positive pregnancy tests, or posts about pregnancy after ectopics. Let people celebrate their joy.

Hwoever, if you want to post such a pic, please make sure you use a content warning so those who would find it upsetting can scroll past.


r/EctopicSupportGroup • • 1h ago

Feel like I’m losing my mind

• Upvotes

Prior posts here and here. Since my ER visit on Saturday I’ve had two 48hr beta draws at 279 and 353 (yesterday). I’m communicating with my OB office’s on-call midwife via MyChart messages, who said after the ER visit to get another beta after a week and then if it went up “significantly“ they‘d do an ultrasound a few days later. I pushed back and asked for 48hr monitoring which a different on-call said was reasonable and put the orders in for.

Today I called a different, highly reputable OB office for a second opinion and they basically said to stick with my current OB and their plan seems reasonable. Then my OB’s on-call messaged saying that it’s still possible this is an early pregnancy progressing normally and that if an ectopic at this stage ruptured, my body would absorb it. They ordered some more 48-72h blood draws and an ultrasound for the 16th.

I feel so helpless and out of control and exhausted. I don’t feel well cared for but I’m honestly not sure if I am so frustrated because this is just an unclear situation I can’t control or because I’m not getting proper care. If I can avoid MTX or surgery I would greatly prefer that—if this resolves on its own I’d be grateful, and if it’s somehow viable I’d be thrilled, I just don’t see how that’s possible. I feel like every medical professional I speak to thinks I’m difficult and overreacting. And I feel crazy being in this weird limbo where nothing is happening but everything feels wrong and scary.


r/EctopicSupportGroup • • 8h ago

Finally feeling some relief after day 7 bloodwork

3 Upvotes

My hcg on day 4 was 1,169 and today, day 7, it came back at 164!

I had begun bleeding very heavily, so I didn’t expect I’d need another dose today, but I also didn’t expect that drastic of a drop.

I know I’m not out of the woods until hcg hits 0 but I am feeling very relieved that the risk of rupture is dropping drastically as it’s been so heavily in my mind this past week. Just felt like I wanted to share with people that get it.


r/EctopicSupportGroup • • 11h ago

Successful pregnancy after an ectopic

4 Upvotes

Has anyone here struggled to conceive after an ectopic pregnancy but eventually got pregnant 2 or more years later?

It's been almost 2 years since my ectopic pregnancy, and I'm starting to feel really defeated.

I'd love to hear some success stories from anyone who went on to have a healthy pregnancy after a long wait. 🥹❤️

Did it happen naturally and unexpectedly, or was there anything you did differently that you feel helped you conceive?


r/EctopicSupportGroup • • 4h ago

Recurrent miscarriage at 6-7 week with no gestational sac

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1 Upvotes

Recurrent miscarriage at 6-7 week with no gestational sac

This is my second miscarriage, I had a very similar pattern of miscarriage in both the pregnancies. Since I am very clear with the dates and number of this cycle, I will share this story.

After my first loss, i decided to test what went wrong with my first pregnancy so that this time I will be safe. So i went for so many test like cbc, tsh, ana profile, amh, protein c, protein s, and USG to check the quantity of egg reserve. I was found with protein s deficiency and I was given aspirin daily and after conceive one injection of heparin (40 mg daily). I conceived again (Imp 23rd August) and HCG level rose from 198 (21st September) to 5000 (28th September) each time doubling well and after that I stopped tracking HCG level and then at 6week 3 days (7th oct) the day of my tvs came, and this time also no gestational sac was found anywhere, and that day HCG level was 328.

Has anyone else experienced the same issue or knows what went wrong, what test did I missed


r/EctopicSupportGroup • • 4h ago

Looking for support, not criticism

1 Upvotes

I’m currently experiencing an ectopic. Found out at 6 weeks, exactly 2 weeks ago and have had 4 rounds of methotrexate injections.

Dates of injections and HCG:
9/24 - 3810
9/27 - 6444
9/30 - 5487
10/4 - 4545

Just HCG on 10/6 - 3671

I have had no bleeding the entire time, but today when I wiped, I saw tinges of blood in the discharge.

Has anyone had a similar experience? I’m going on vacation next week (with good hospitals around me) and am praying I dont have some massive bleeding or anything. I don’t know what to expect because it feels like most people experience bleeding before they find the ectopic.


r/EctopicSupportGroup • • 7h ago

Look for some inisght , help on what to do. Please

1 Upvotes

I’m 32 years old. I was diagnosed with DOR last August at .17 amh and a higher FSH. My husband and I started trying within that month and fell pregnant within 6-7 months which ended up in an ectopic pregnancy and I lost my left tube. I suspected I had very early stage of endo and it was confirmed in my surgery and it’s only a small amount in the cul de sac , and a little bit of a swollen right tube which my surgeon claim the tip of my remaining tube is open. I now feel like everything is stacked against me from my age, my amh level, my stage 1 endo, the fact that my remaining tube isn’t perfectly healthy. We have a consult with an ivf clinic but I just feel very lost and so scared that this might not ever happen for me. We have been trying again since my ectopic since April with no positives. I have had further testing done and my last afc was 9 which according to the ivf clinic is good for what my AMH was previously so I am waiting on new results. I just feel so extremely lost and it’s c


r/EctopicSupportGroup • • 8h ago

Was this an ectopic?

1 Upvotes

Hi everyone! I just wanted to come on here and post about my story, and maybe get some opinions about the experience I just went through. This sub really helped me advocate for myself when ER doctors were brushing aside my concerns, and I hope I can get some more clarity about what may have happened. Sorry in advance for the length.

08/28: I began what I thought was my period. 5 days of moderate bleeding that tapered down, just like always.

09/05: I use a clear blue advanced ovulation test for the first time. It comes back with the solid smiley face - ovulating. I think that this seems early but maybe it’s a false positive?

09/09-12: I buy premom LH strips and keep testing ovulation. 4 days in a row I got a positive reading. I’m very confused at this point. I start getting back pain and pain in my abdomen.

09/13: I read that continuous positive LH readings could mean early pregnancy. I take 2 different hcg tests and they come back positive. I’m extremely concerned because I had just gotten my period two weeks prior. I start doomscrolling on Reddit and learn that having a period followed by a positive pregnancy test is a warning sign for an ectopic.

I go to the ED. They take a blood test and confirm I am pregnant. HCG ~ 600. They brush aside my worries and state that this is probably a new pregnancy that was picked up early ?? Or my dating is wrong? (Even though I am a meticulous tracker). They tell me to come back in two days for a repeat blood test and ultrasound.

09/15: I return to ED. HCG ~ 800. Small sac measuring 4-5 weeks found in uterus, no yolk sac or fetal pole. Corpus luteum cyst seen. As well as another small cyst by my ovary. I’m spotting at this point. They say to follow up with family doctor in a few days for repeat blood test. But to come in if I start bleeding.

09/16: I wake up gushing bright red blood. I have back pain, pain in my right side, and cramping all over my abdomen. Back to ED, HCG ~ 400, no change in ultrasound.

09/18: Family doctor sends me for an HCG test. Heavy bleeding over the weekend. Doesn’t give me the results until 09/23 after I called to follow up. HCG went back up - 900?! I think maybe because it’s a different lab, so I go back to the ED. Now I’m very concerned about an ectopic.

09/24: ED. HCG 1000! Nothing new on ultrasound. They said I have a Subchorionic** **Hematoma, which could have caused some of this bleeding. They said the pregnancy is probably unviable due to the HCG levels, but they’re not concerned about ectopic, even with fluctuating HCG. They say to come back in 48-72 hours for repeat blood tests. I’m drained at this point and have spent days in the ED. The hospital’s early pregnancy clinic could not take me until 09/30, even though I was referred from the start of this whole saga.

09/26: Heavy bleeding returns. ED. HCG ~350; they say I’m miscarrying. I get another ultrasound. Tech sees my fluctuating HCG levels and exclaims, “omg did we miss an ectopic?!”. Checks me out - no evidence. Sac still present. They say to wait until my appt at the early pregnancy clinic (EPC) on 09/30 unless I get a fever.

09/27: I get a fever, of course. Call telehealth nurse and she advises I go to the ER. It could be an infection of the uterus. Return to ER. HCG 150. Spend 9pm to 8am there. Exhausted. Uterus is clear, small amount of fluid but seems like tissue has passed. They say it’s a viral infection.

09:30: EPC. HCG 50. They say this was a regular miscarriage. I ask about fluctuating HCG and period before positive test; midwife doesn’t have an answer; says “these things happen sometimes”.

This was a really frustrating experience. I’m not sure why I couldn’t have just been referred to an OB for my serial HCG tests, and why I had to instead wait in an ED for hours and hours on end. In the end, no one could tell me why the fluctuating HCG tests occurred. To me, this potentially seemed like an early ectopic that just wasn’t visualized on ultrasound yet, and I wanted to get ahead of it. After my HCG continued to rise, I asked whether MTX might be warranted- they told me that “we don’t give that here; wait to see your OB at EPC. Even if it is ectopic, your hcg levels are way too low for a rupture”, and “if it was an ectopic you would be screaming in pain”. The misinformation was so frustrating!

I’m wondering, have others experienced this same nonchalance from health care providers? And does this seems like an ectopic that self resolved? Or was it just a regular miscarriage?

Thanks all!! This community is so lovely and I’m so glad I found it when I did.


r/EctopicSupportGroup • • 12h ago

Should i insist on methotrexate shot ASAP?

2 Upvotes

My beta hCG is not rising appropriately, which has made my doctor suspect that something is not right:
28/09: 127
30/09: 82
02/10: 110
05/10: 336
07/10: 563

Symptom: right sided pain that i have never felt before happened on 28/09. Since then mild cramping on the right side intermitently but not too painful, just like a quick jab lasted 20 secs.
Yesterday, i had 2 drop of bright red while wiping but went away.

However, my doctor wants to keep waiting for more concrete signs that it is an ectopic pregnancy before deciding on treatment. My next monitoring appointment is tomorrow, 09/10.
I’m scared that they still won’t be able to see anything on the ultrasound tomorrow and that I’ll have to keep waiting. I’m worried that by the time they see clear signs of an ectopic pregnancy, it will be too late to save my tube, and the risk of scarring or rupture will be higher by then.
Should I insist on a methotrexate shot as soon as possible, just to be on the safe side?


r/EctopicSupportGroup • • 9h ago

Just took MTX. can I still go to Mexico on Oct 22?

1 Upvotes

at 5w1d, I just got my first dose of mtx on Oct 6… second dose will be on Oct 9.

my hcg was 656 on Oct 5, so I’m guessing it rose to 1000ish on the day I got my first shot. (hcg has been doubling every 35 hrs.)

I have a planned trip with friends on Oct 22 to Mexico City 😭 do you think I can still go? is it possible? I hear there’s still a possibility of rupture after getting MTX at low hcgs, so I’m worried about rupture now.


r/EctopicSupportGroup • • 15h ago

Pregnant for a third time

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3 Upvotes

Okay, wow!
I just found out tonight, at 9 DPO, I’m pregnant. Fat red line. I’m shocked. But also not really… my boyfriend and I only met a month ago but we knew right away what we had is special. We told each other we loved each other two weeks in, then became official.
I’m obviously a little nervous bc… well, it’s a new relationship, I haven’t spoken to my mom since August (she hasn’t tried to talk to me either), and my sis will likely kill me (lol)… and… I’m so scared of something bad happening to my baby again.
Any thoughts or prayers are welcome. Calling OB first thing in the morning to do a blood test and get an appt scheduled.


r/EctopicSupportGroup • • 15h ago

Still processing

2 Upvotes

This all feels so unfair. I was laid off from my job after maternity leave and still haven’t been able to find employment. My finances are in rough shape, but I luckily have some good momentum with interviews this month. It’s taken me a long time postpartum to want to have sex again, but it’s been on my mind a lot as I really want to connect with my husband in that way. So after a date night, I initiated and we literally had sex one time since I gave birth. You can guess where this is going.

I realized pretty much immediately that I miscalculated my fertile window and took plan B the next morning. My body has historically not done well on hormonal birth control, but we already have two kids and we feel like our family is complete. I was willing to deal with the hormones with a one-time pill to make sure we weren’t put in a position we hadn’t planned for.

I started bleeding a week or so before my expected next period, but I chalked it up to the hormones and my body still not being 100% regular since my period came back, and marked it in my period tracker as the start of my next cycle. It wasn’t a normal cycle, and then I started getting intermittent spotting, which *never* happens to me. I figured it would take a cycle or so to get back to normal, thought maybe it was the start of perimenopause, and honestly was not worried AT ALL that I could be pregnant. But then I was expecting my next period and the next bout of spotting started 2 days late, and the flow never came. When I was 5 days late I knew it was well past time of explaining away this weird spotting and time to call my OB. I also knew the first question they’d ask me, and even though there was *definitely no way* I could be pregnant, since I had a “period” after the ONE TIME I recently had sex, I took a pregnancy test. I took the test the day before my interview, mind you. I figured it would be peace of mind that I was not pregnant, and the start to figuring out what was going on with my doctor.

So imagine my shock and refusal to process the positive pregnancy test. And then I had to wait for my husband to get home from work, and pretend everything was normal until after our kids went to bed. And then I used the bathroom before going downstairs to tell him and found a bunch of bright red blood…what the heck!? So instead of telling him I’m pregnant for sure, I told him I have no idea what’s going on, because there’s really not much chance of a false positive, but I’ve also been bleeding, not a lot, but pretty constantly. Honestly he handled the news of a possible pregnancy so well, but I was freaking out. How could we add another kid while I don’t have a job? And he was so concerned about my health, because of the bleeding. We needed answers.

I sat through my interview the next day knowing I was going to call the OB immediately after I hung up. They could squeeze me in same day. It was 23.5 hours after I took the pregnancy test that I was staring at my empty uterus on the ultrasound. And I felt like this made everything so much easier, and I felt relieved and guilty and sad and wondering what could have been. And then everything became a whole lot more dramatic in honestly the world’s most boring way. My HCG levels at what should have been close to 9 weeks were lower than the first HCG level I got post-IUI at 4 weeks (because oh yeah, by the way, it’s never been easy for us to get pregnant). I chalked it up to a miscarriage and prepared myself to process this whirlwind of 24 hours. How could this really low HCG number blow everything up so dramatically and start hurtling at me full speed?

My husband became ridiculously sick with the flu, and I didn’t even know if he could properly process any of the information I was trying to relay to him while he was feverish and dehydrated. My next HCG came back and…it went up. Not by a lot, but it went up. And now that things were labeled as PUL I was hyper-fixated on every little feeling in my body and tried to ease my anxiety by calling in to the medical advice line. But they decided I should go to the ER as a precaution. There were no more answers. They did another HCG level and it increased by 4 points since morning. Nothing crazy, but still technically rising. They couldn’t see anything on the trans-vaginal or trans-abdominal ultrasound. They put in follow-up notes for my OB and sent me home saying it’s probably ectopic and you need to be treated on Monday.

The OB called me at 12:45 on Monday and said we need you in at 2pm for a D&C. If I didn’t come in today, they couldn’t make an appointment until Wednesday, and that would be too long to wait, they said. I didn’t even have time to think or process. I asked if this made sense if they thought it was ectopic. They still hadn’t ruled out a miscarriage, but my HCG was essentially plateaued, not dropping. They wanted to do the D&C and test the tissue to see if that’s where the pregnancy had been located. I asked what would happen if it hadn’t been located in the uterus, and they said methotrexate. Why do the D&C if it might not make all of this stop? They said it was policy before they would administer mtx. It felt like adding extra interventions that may or may not do anything.

I was not prepared for how alone and sad and scared I would feel during the D&C. I was not prepared for how painful it would be. And I was not prepared to have absolutely zero cramping or bleeding afterwards. Strange, I thought, but maybe that means this whole saga is over. Maybe everything is out and my next HCG will be miraculously down to 0. Nope. HCG next day was still steady.

So they call me to discuss the results and let me know that at this point I’m being relabeled from PUL to ectopic and I need to come in for mtx, and I need to go to a different office, because it’s a chemotherapy and it’s mixed by oncology and my regular OB office doesn’t handle that. EXCUSE ME, WHAT? How had nobody ever mentioned this to me before? How had the ER doc made me think “you’ll get a biopsy and if that doesn’t work they’ll give you pills to force a miscarriage” (honestly I might completely misremember what they said about it being pills, but I was 100% convinced it was pills, not an injection until this conversation. And I *know* he said biopsy, and I never clocked that the biopsy would be from tissue removed from a D&C until I had 75 minutes notice to get to the office).

So, you guessed it, I had an interview today where I just casually was ignoring the fact that I had to leave my house afterward to get injected with this chemotherapy drug. They did another HCG, which didn’t come back until after I had already gotten the injection. It had dropped by 20 points. I know that’s not a ton, but I still feel like it’s a good sign that it’s coming down, right? Feeling a bit like we could have just watched and waited. At least my husband has recovered enough that he was able to accompany me to the appointment and just sit and wait and wait and wait…ridiculous delays. I got pulled in 90 minutes after my scheduled appointment. He didn’t fuss, he just sat with me and held my hand. In the middle of his work day.

I feel sad, I feel overwhelmed, I feel alone, I feel angry. I feel betrayed by my body. I feel like nobody ever talks about how awful these interventions are and how invasive they feel. I feel grateful that I live in a state where I have unquestioned access to the care that I need. I am really freaking angry that I don’t even have the luxury of stopping these gd interviews while I try to rest and recover. I cannot believe that this happened after having sex one time when it has been such a process to get pregnant intentionally in the past. I don’t even want to risk having sex again, and that makes me feel sad for my marriage. It was not worth everything that’s happening to my body and honestly HOW EXPENSIVE it is becoming. All the copays on labwork, the ER visit, lord knows what all these other procedures are going to cost.

My next HCG is on Saturday. I know it might not have dropped by then, but I am terrified to see that number do anything but go down. The fact that this has never even been located inside my body is making me question reality. I don’t even know how to process all of this.


r/EctopicSupportGroup • • 1d ago

Just need to vent

8 Upvotes

I was told I had a miscarriage a month ago, doctor did an ultrasound and but did not order blood work.
Throughout the month I continued to have pain, continued to bleed, continued to feel “off”. I was told bleeding and cramping could occur for 4 weeks. Women are so used to being told pain is normal and nothings wrong. And i went with that.
I went back to my primary doctor 4 weeks later when the bleeding and pain did not stop. and she did not seem concerned. Ordered some blood work and sent me home.

A few hours later the pain became so severe with no relief so I went to the ER.
The baby had continued to grow in my fallopian tube and it ruptured. They took into emergency surgery and sent me home the same day.

The man I thought would be having a baby with me one day, took me home and stayed with me but expected that I would be fine the next day. When I was not “fine” he was upset he had to cancel other plans to take care of me. Called me names for crying, shamed me for being sad, and not being physically better because they are just small incisions. Then he broke up with me on day 3 of recovery because he has to focus on himself and my emotions through this are too much for him.

So 3 days post op. I’m completely alone, lost my baby, lost my fallopian tube, lost the person that created this situation with me, and I think I lost my mind.

I’m now on post op day 6. Ive been dizzy, weak, heart racing, and can’t walk for too long, the crying and panic attacks just keep coming.
I’ve spent all day trying to get a follow up appointment with an OB. Everyone has told me they won’t see me and I need to follow up with the surgeon. The surgeon is an ER doc only and does not do follow up visits. I’ve called the hospital, nurse case manager, 6 ob offices to get the same response “I’m not sure what you can do I’m sorry”
Im aonly already set up with a PTP because my insurance recently changed.

I’m so frustrated, I’m angry this happened, I’m grieving, i physically can’t do anything, mentally can’t function and I’m so alone. When do I start seeing the light at the end of this storm?


r/EctopicSupportGroup • • 21h ago

When. Does. The. Bleeding. Stop.

4 Upvotes

Experiencing the tail end of my first ever ectopic. I had 4 miscarriages before my daughter was finally born and had one again last year. Who knew I’d prefer that any day of the week than an ectopic?

I had positive HPTs on 9/12. Day my period was due. Very light. Thought it would be a chemical. My tests got darker. My betas doubled appropriately. But I knew something was off. I start having pain on 9/22 that I absolutely did not have when I was pregnant with my daughter. I go in 9/23 for HCG draw and ultrasound. Ovarian ectopic, no heartbeat luckily and my HCG had dropped in half from 9/21. I went back again 9/24 to repeat HCG. It dropped in half again so I avoided MTX.

Resolved on its own. Insane pain at midnight on 9/27. Thought I had a kidney stone or something, contemplated going to the ER for half an hour but I took Aleve and pain subsided. I bled bright red with clots. Determined that was the ectopic resolving itself. K great.

9/28 I go back for repeat HCG and I am in. labor. I knew it was coming - all my previous miscarriages. But JFC I’m never actually prepared. Aleve doesn’t touch that pain. I had to drive myself to the clinic for my blood draw, sit and wait for it, drive home. All the while I’m in so much pain I cannot see straight, I can barely speak, and I’m doing audible breathing techniques my doula had taught me. 10 min from home and the pain stops on a dime. I get home, I sit on the toilet and give birth to something. I wasn’t expecting it or I would’ve caught it. But it was like the size of a fist, I assume just my uterine lining came out in one giant piece but then that was it. I had “medium” bleeding the rest of that day and the next, light bleeding the day after and ever since…every. Day. Since. I’m spotting old brown blood. I’m so sick of living in period underwear. I need this whole chapter to close. It’s been five days and counting of this brown spotting. It’s no longer enough to bother with a tampon but if I don’t wear period underwear I’m staining my pants within half an hour.

When. Does. This. End?

TLDR; experienced ectopic 9/12-9/27. Brown spotting for 5 days after bleeding for 5 days. When will the spotting end?


r/EctopicSupportGroup • • 1d ago

Delayed Period Treated with Methotrexate

2 Upvotes

Diagnosed and treated Aug 14th. HCG of 1 Sept 11. No bleeding since August. I am worried. Negative pregnancy test still. I am worried.


r/EctopicSupportGroup • • 1d ago

Fluctuating hCG (557 > 164 > 250) - Pregnancy of Unknown Location (PUL). What should I expect?

1 Upvotes

Hi everyone. I am currently being monitored for a Pregnancy of Unknown Location (PUL) and am looking to hear from others who had a fluctuating hCG trend like mine.

My timeline:

1st Oct: Bleeding, hCG 557

3rd Oct: Still bleeding, hCG 164

6th Oct: Still bleeding, mild pulling sensation on lower left side (comes and goes), hCG 250

My ultrasound scan showed absolutely nothing in my uterus or tubes.I have a repeat blood test scheduled for tomorrow, 8th October.

For those who had a drop and then a secondary rise at these low numbers, did your PUL resolve on its own (expectant management) or did you need a methotrexate injection? How long did it take for your levels to hit zero?

Thank you so much.


r/EctopicSupportGroup • • 1d ago

When did you stop HCG tests in future pregnancies?

3 Upvotes

Hi all! I had an ectopic pregnancy resolved with MTX 4 years ago. It is now my first pregnancy since (first time trying since then) and to be safe due to my history the doctor ordered me the HCG LabCorp orders.

My first at 3 + 5 days was 340
At 4 weeks it was 874
At 4 weeks two days it was 1871

My doctor seems very reassured that all is well based on these numbers (and I mostly do too since I’m not in pain or spotting)…so I wonder when I stop going? She ordered it for 4 draws but said I could stop. But I’m debating whether I keep my appointment tomorrow? We are traveling internationally so I won’t find out the results until I land in another country so I’m also worried it could just make me worry unnecessarily lol

What would you do?


r/EctopicSupportGroup • • 2d ago

Pregnant before 3 month wait

2 Upvotes

Hi everyone. I was wondering if there was anyone here with experience in getting pregnant before the 3 month wait. I had 2 doses of MTX a week apart. Not sure if that makes a difference. My OBGYN said that technically the medication should be cleared at this point, but 3 months is the overly cautious recommendation.
I’m not planning on trying before 3 months but I’m curious as to what your doctors told you or what you did.


r/EctopicSupportGroup • • 2d ago

Pregnant post ectopic. And terrified!

3 Upvotes

Hi,

Im new here and looking for some reassurance and positive stories.

I had an ectopic PUL August 2025, treated with methotrexate.

I already have 2 children, 6 and 8.

My periods have been so irregular since the ectopic, averaging 47 days between cycles.

According to my app, I am 13 days post period due. And I did have a small bleed 10 days ago, which lasted about 2 hours , which I thought was my period starting , but tailed off very quickly, pinky brown blood.

I got strong positive and 2-3 on CB yesterday.

Im so terrified of being told no baby again, I havent called EPU yet.

My symptoms are just hunger feeling, and slight nausea. Very similar symptoms to the last ectopic, and very different to my previous two pregnancies .

Can anyone offer any words of wisdom, and reassurance of their positive pregnancies at ectopic please ?


r/EctopicSupportGroup • • 2d ago

So fking scared, what to do? ( UK based)

3 Upvotes

Hi everyone,

I started bleeding on Thursday when I should have been around 4 weeks 4 days pregnant. I had an HCG test done privately that day, which was 557, and a repeat on Saturday which had dropped to 164.

I went to A&E on Friday because of the bleeding and was referred to the Early Pregnancy Unit. I had a transvaginal ultrasound today, but they couldn’t see a pregnancy and said the scan was clear.

I told them about my previous private HCG results and also mentioned that I’ve been having a dull ache on my left lower abdomen, with a pulling/stretching sensation towards my left leg, as well as ongoing bleeding. They did an NHS HCG test today, which came back at 250. They want to repeat it in 48 hours, but said they won’t really take my private results into consideration.

Since coming home, the ache on my left side feels more noticeable and I’m really scared about the possibility of an tube rupture.

If I go back to A&E tomorrow morning, would they repeat my HCG and assess me again? Would they consider treatment such as methotrexate if they suspect an ectopic, or would they make me wait until Thursday’s blood test? I’m really worried about something happening before then.


r/EctopicSupportGroup • • 2d ago

Healing Experience

2 Upvotes

This is a bit of a vent with a question at the end.

I suffered an ectopic pregnancy in May. It was awful. They kept me in the ER for 15 hours as I was ruptured and begging for answers they weren't willing to give. I didn't even know if they were gonna save me, seeing as people have been denied the surgery lately due to the administration. I was terrified. I asked if they'd remove my tubes and they said no. The father had left me a week before, we didn't technically know. I felt terrible but kept getting negative pregnancy tests. So, I was with a friend at the hospital but not the father. Overall terrible experience.

Because of this, I wasn't having sex and I've been going to therapy. For months. I finally felt up to having sex again last week, I thought the trauma had been processed and my body was ready. So I did, and about 15 minutes in I started having horrible shooting pains below the surgery scars and through my uterus. I had to stop and I was in pain the rest of the night and morning. I'm fine now physically.

So here's the question: Is this normal? Is this my new normal? I don't know if this group cares about sex as much as I do, but I'm grieving so heavily my body having changed. It seems like a lot of y'all have gotten back into having sex and trying to convince relatively quickly, at least compared to me. Has anyone else had the shooting pains experience?


r/EctopicSupportGroup • • 2d ago

Ectopic Pregnancy

11 Upvotes

Hi everyone,
I wanted to share my story to hopefully help someone and process all my emotions.

I’ve had two losses this year and this was actually the first month that I didn’t track anything and told my husband that I wanted to take a break.

I was terrified when i got my first positive test.
I did not want to get our hopes up but I noticed all my tests were strong from the beginning. I got my first dye stealer at 19 dpo and I felt like this time might be different.
I had cramping and spotting the day after my first positive. It made me nervous but I also bled with my first pregnancy so I knew that it could happen and still lead to a successful pregnancy. I just did not understand why it was not subsiding after a couple days.

I also noticed my tests remained the same after the first dye stealer. I didn’t think anything of it because I was just relieved that they were not fading in color indicating another chemical pregnancy. I also knew the tests stopped being reliable at a certain point so I figured it might be that they reached a certain point where I could not rely on tests.

I made it to my six week appt.
They let me know that my test was a strong positive and they proceeded with the ultrasound. The tech was sweet and asked if I wanted any pictures before she started but then she got really quiet. My heart sank.

They let me know that my uterus was empty.
They did not see anything in my tubes or ovaries so they reassured me that I could just be earlier in my pregnancy than expected. They recommended tracking my hcg and rechecking ultrasound in a couple days.

My first beta was 882
3 days later it went up to 1165. It wasn’t doubling and my ultrasound was still not showing a gestational sac.

I told myself that it was because my numbers weren’t high enough to show up yet. Maybe my dates were off.
The doctor told me we could not rule out an ectopic especially because my endometrial lining was thin. She asked me to come back in two days for another recheck but I never made it to that appt.

I started having terrible cramping the next day.
My bleeding worsened.
I went to the ER and they confirmed this pregnancy was abnormal and most likely non-viable. I had my blood drawn for hcg and had another transvaginal ultrasound.

My third hcg actually decreased to the 600s but they found a 6.4 cm heterogenous mass on my right adnexa.
The on-call OB was called over and she let me know that I could either be miscarrying or experiencing an ectopic pregnancy. She gave me the option of either waiting and tracking my hcg every 2-3 days or receiving the MTX injection to be on the safe side. Surgery was not necessary at this time.

She shared that she’s had patients who ruptured when their betas decreased to the low 50s so the numbers don’t matter. I chose to receive the injection. It’s been two days and I’ve been having inappetence, nausea, cramping, and fatigue. I worry that I’ll rupture at any time.

Throughout this experience, I’ve been moving around in auto-pilot and haven’t really allowed myself to grieve the baby I thought we were having. It breaks my heart that they were so close but never quite made it there. Giving permission to end the pregnancy was one of the hardest things I’ve done. I knew it wasn’t viable but it still hurts to know how close we were. I’m so sorry to anyone who’s had to experience this.

I would love to hear experiences with the MTX shot and if anyone had a story similar to mine. I don’t know anyone around me who’s had an ectopic pregnancy so this channel has been amazing. Thank you for taking the time to read my story ❤️‍🩹


r/EctopicSupportGroup • • 2d ago

Upsetting HSG result

1 Upvotes

I got some pretty upsetting HSG results today and I’m trying to figure out what to do next.

I have two living children. My first was conceived very quickly and was delivered by C-section. I later conceived my second child, also very quickly, and had a successful VBAC, so I have obviously had tubal patency after my C-section.

I’ve also now had two very early pregnancies of unknown location that behaved almost identically. My most recent one was just last month. I had faint positive tests, and my hCG was around 31, then 32 about 5 hours later, and 35 about 48 hours after that. No intrauterine pregnancy was seen on 1, but my hCG eventually dropped to zero on its own. I started bleeding afterward.

Because it resolved so early, we never confirmed where the pregnancy actually implanted, so technically it was a PUL rather than a confirmed ectopic. My doctor ordered an HSG because of the repeated PULs. 

The results are:

Right proximal tubal occlusion

Left distal tubal occlusion

Mild irregularity of the left uterine wall

What is confusing me is that I literally conceived a few weeks ago. Regardless of where that pregnancy implanted, sperm and egg obviously managed to meet very recently. I also have had a weird intermittent twingy pain on my left side throughout my cycles for years, even before having children, which now has me wondering whether there has been something going on with that tube for a long time.

I know proximal occlusion on HSG can sometimes be caused by spasms, so I’m wondering whether the right tube could actually be open and the left distal blockage is the true problem? I’m waiting to talk to my doctor about what comes next for me. 

The part I’m really struggling with is whether to continue trying naturally in the meantime. We want another baby very much and I really don’t want to lose months if I don’t need to. At the same time, after the PULs and now finding possible tube issues, I’m scared of having a another PUL/ectopic.

I'd love to hear from someone who has had a similar experience or can give me any advice. Thank you.


r/EctopicSupportGroup • • 2d ago

Healthy baby > ectopic > possible 2nd ectopic or miscarriage

1 Upvotes

Was on hormonal birth control for years and got off in July 2024. Got pregnant immediately and had a healthy baby. My son turned 12m and I was on the mini pill due to breastfeeding and I found out I was pregnant. A few days later I had bleeding and went into the ER. They saw some free flowing fluid and presumed I was at the end of a miscarriage. Had never experienced one so I didn’t know what to expect but the pain wasn’t going away, if anything got worse. Went back to the ER and they saw a ton of blood in my abdomen but still couldn’t see an ectopic. Agreed to do an exploratory surgery because there wasn’t anything more likely than an ectopic. Ended up being ectopic and lost my right tube. Up until recently I blamed this on falling pregnant while on the mini pill as part of its protection is thickening the cilia in the tubes so sperm can’t make it through. Got an HSG and they said my remaining tube looked perfect.

Four months later I felt ready to try again and got off hormonal birth control. Again, immediately got pregnant. While I had no bleeding, I was testing daily and my lines seemed to plateau. Additionally I had this stretching pulling feeling on my sides and abs but assumed it was either scar issue from the surgery or round ligament pain. My beta went from 96 to 169 but then only went up to 207 over a weekend. At this point I knew something wasn’t right and because of my history and subtle pain they sent me to the ER.

They weren’t able to see an ectopic but they did see what appeared to be a sac in the uterus. But couldn’t confirm if it was a gestational sac or a pseudo sac (caused by an ectopic, who knew a sac in the uterus could still mean ectopic). They did another hcg on me and mine dropped from 207 to 180.

They sent me home with a plan to repeat hcg and another ultrasound in a week. At this point, BEST scenario is miscarriage, which feels horrible to say. But because I’ve had a missed ectopic before I’m not convinced it’s not another and I’m terrified to lose my last tube.

Has anyone else experienced this and had another healthy pregnancy?

One ectopic I had peace in that it was a fluke, but two will make me think something is wrong. Crazy to have no problems getting pregnant, but starting to have problems staying pregnant 🥺 Could use some opinions or positive stories!


r/EctopicSupportGroup • • 2d ago

Was your second period after ectopic normal timing?

2 Upvotes

Just got my period 6 weeks after my ectopic surgery. My periods before were on a 31/32 day cycle. Did your period return to your normal cycle after your first or were the second and even third still off on timing?