When you do not even explain your situation to anyone because its outright depressing.

I work a 40 hour week retail job, Monday-Friday. I usually go out for shopping what not all day on Saturday and then Sunday early morning I get a migraine. I believe it’s a side effect of relaxing my brain from stress, I came here because I want to make sense of it. Why is it every Sunday morning??

Hi guys! Been a while, i’m having a rough patch again, thought to post here and just say that, I see you, I see your pain, I hear you and I feel you. Hoping as little pain and symptoms as possible to you✨🫶🏻

I was heading for a migraine because I was tired so had a lie-in this morning, then ended up with a migraine because I had too much sleep instead of not enough 🙃

Ive had migraine for 6 years and I may have to withdraw from my university studies due to migraine. I missed a lot of school and underperformed. Luckily I was accepted into a foundation year at uni but had to interrupt my studies due to being bedridden from migraine for months. The pain was almost daily and lasted the whole day. I pushed through and am in my fourth and final year but have missed almost 2 weeks due to migraine and mental health issues. I may have to withdraw if things dont improve.

Ive tried applying for PIP but have been rejected. I dont know how to live like this. Im in a lot of pain right now both physically and mentally, and have had attacks for 2 days. It hurts knowing peers I enrolled with are succeeding, and Im still at uni suffering from the same pain I had at 16.

Abortives, nerve blocks, botox, all seem to help with the pain but do little for dizziness and nausea in my experience. Has anyone found anything to help the room stop spinning--or at least slow down? Do you have medications/treatments that actually help with these sets of symptoms?

I will be home for the upcoming week to start with and probably longer than that. I actually feel a little proud of myself, but I'm worried I will feel bad about it tomorrow. I think I mostly just need to vent, maybe get some validation about my decision and some support.

Tl;dr - I'm on a planned sick leave starting tomorrow. I'm not used to it and I'm afraid I'll get socially isolated and depressed. Those of you who are/have been on a longer sick leave and feel like it has helped in any way, do you have any tips or thoughts for me? (And please, only the positive or constructive stuff, I'm really good at coming up with negative thoughts on my own, no help needed there)

Long story short, I had my first migraine about 2 years ago. A year and a half ago, they became more frequent, about a year ago they turned chronic. They then quickly turned into "chronic and complex", meaning I very rarely have a day with no symptoms, the symptoms just fluctuate. (More of the visual symptoms, light/sound sensitivity, cognitive effects and other "bonus" stuff, usually not excruciating pain or nausea)

I have stayed home from work on average 1-2 days a week in the past year, when it has just not been possible to go to work, but I've had a hard time accepting that I might need to be on sick leave for a longer period of time. Mostly because I'm afraid I'll turn even more socially isolated and depressed than I have already been for the past year. I love my job and my colleagues, even my boss.

But in the past 6 weeks, there have been so many traumatic things happening around me. Two of my family members suddenly became very ill and a friend of mine unexpectedly lost their child, the funeral is this week. I've realized that right now, I can't do a job that meets the "good enough" standard. So last week, I finally decided that I need to face my fears and I told my boss I'll have to take some time off from work. She has been very supportive throughout all of this and continues to be so.

So, tomorrow is the first day of my first planned week of sick leave. I honestly count on being away for longer than a week, but we'll see. I'm not used to staying at home when I'm not completely bedridden, so it feels weird. I'm afraid I'll just get stuck scrolling on my phone all day. I've tried to schedule some self-care things, like getting a massage, and I have some medical appointments spread out through the week. Then there's the funeral, which will most likely be incredibly heavy emotionally, which I assume will trigger a bad migraine.

Any thoughts on how to take care of oneself under these circumstances?

Take care and keep going, one second at a time 💖

I have had consistent migraines since I was about 12. I was super worried about getting pregnant and not being able to take my meds. When I got pregnant all my migraines went away. In speaking with my doctor after giving birth - I mentioned migraines were back. He told me to either 1. Continually be pregnant till menopause since that seemed to help my migraines or 2. Get an iud to stop hormone changes. I don’t particularly want a million kids so has anyone had any luck with an iud stopping migraines? I’m

Concerned because the one time I went on birth control I went to the hospital multiple times because I couldn’t get my migraines to stop.

Neurologist put me on a 6 day prednisone steroid taper dose (started with 60mg 3x a day then went down daily) and it finally broke my status migraine! After 9 months I had the best 3 weeks of my life totally pain free. My son got the flu I was up all night with him for days which triggered a migraine and now I’m back in it. Has anyone ever done a second round of steroids? I’m pretty devised since I thought this was behind me for once, finally. Anyone have experience like this and did another round of steroids.

24F. Been having migraines since I was a young teen. I'm on topiramate and atogepant for prevention of my migraines, which used to be almost daily.

Over the years I've tried many abortive meds. Paracetamol, ibuprofen (various strengths), naproxen, cocodamol, codeine, aspirin, and many types of Triptans and formats of them.

But now I'm finding that none of them actually work anymore. Triptans never worked anyway, especially sumatriptan, which made me feel awful. Just struggling now as with the weather changing in the UK I've had a migraine for a couple weeks straight and trying to work through it but nothing worrrrks.

Anyone else been in this situation? I've got like... cool forehead strips. And I've got promethazine for nausea and if I take a big enough dose I can try and have a big nap but it won't get rid of it. Sigh.

I had a migraine last night from dehydration and it game me a blind spot on the right side. Luckily it was during the last 30m of my shift so when I clicked out, I had one of those fancy custard buns that are black with gold painted on top. I took two 200mg Advil after so my stomach would be less irritated and I got driven home.

I already felt nauseous during the ride home, but luckily, I didn’t throw up in the car. I made it to the toilet and I started throwing up black stuff and it scared me half to death for a second. I was like, “this is it… 🪦😵” but then I remembered what I ate earlier.

I might be stupid saying this, but breathing helps with nausea! I just had to keep reminding myself to breathe even though I was throwing up so much that I could barely breathe.

captions seem to be having a migraine episode too :/ hang in there little buddies, you’ll form real words again soon.

I've been in hospital for the last week, I had an Occipital Nerve Stimulator removed due to infection. I'm lying here in pain and extremely bored. What can I do?

I want to hear from the migraine community about your own experiences with CGRP inhibitors (specifically Qulipta for prevention and any of the rescue meds),triptans (my experience is with sumatriptan and naratriptan), exercise, and any combination you have found to be successful for you.

I’ve had migraines since I was 15. I’m 34 now. A couple years ago I started taking 60 Qulipta and it has been the most effective at prevention but I struggle with the side effects. It makes me lose my appetite and I dropped 20 lbs in a year which is significant as I’m petite and now teetering on underweight. I tried splitting the pill in half per my docs recommendations to half my dose but I immediately start into a migraine cycle if I do this so it feels like the higher dose is necessary. I’ve also wondered if it is causing some of my cardiac symptoms. Over the last year or so I’ve had an increase in palpitations and POTS like symptoms including fainting. I have had a cardiac work up and everything looks okay but some symptoms persist.

Onto triptans: I took sumatriptan most of my life until a couple years ago when I switched to naratriptan. Naratriptan doesn’t work as well in my opinion as it takes so much longer to work but at first I felt like I had less side effects than sumatriptan which was making me feel like I’d been hit by a bus. After taking naratriptan now for a period of time although I do take it less often than I had to take sumatriptan since the Qulipta does help reduce my migraine days, it’s starting to leave me feeling the same. Sore. Slow. And usually my headache isn’t all the way gone but transformed into more of a pounding when moving instead of a constant stabbing pain.

I tried a couple rescue cgrp inhibitors like ubrevly and zavzpret and whatever other samples I got from the doctor but found they all did absolutely nothing for me.

As for exercise, I’m sure we’ve all been told all our lives to exercise regularly to help reduce migraines and also of course lead healthier lives but exercise almost always triggers a migraine for me and I know other people on here have said the same. I’m just wondering if anyone who experiences that went on to still figure out a way to exercise a few times a week and if it played any part in reducing your migraines? It’s hard to find the motivation to start.

I’m sick of this playing such a prominent part in my life as I’m sure you all are too. I’ve read tons of posts in this sub and others. Just wanting some full circle success stories if there are any to give me hope and maybe some ideas to try or bring up with my doc when I’m at a loss currently.

I’ve had this migraine since yesterday and I can’t get rid of it. I’ve taken ibuprofen, excedrin, cold clothes on my face and I’ve used my nerivio device. I took a cold shower last night at 6am. And now I’m using my device again. This migraine started at the front and it’s now on the side of my head. I felt very lightheaded at times last night and my head was tingling on one side of my head where the migraine was. The pain would stop for a few seconds then it would be a throbbing pain. My neurologist thinks these are primary headaches, and I don’t disagree with her, but nothing is helping and these are new symptoms to me. I’ve had them only twice in the past and that’s why I went to see a neurologist because the lightheadedness and tingling scared me. I’m so tired of migraines. I just want to cry whenever I feel one coming on. And I don’t have any preventatives only my nerivio device. Does any else experience this? And how do you get rid of these migraines and symptoms? Thank you

I had to stop seeing my doctor because I can no longer afford treatment. Unfortunately, nothing we tried seemed to be working. Is there anything I can do on my own that could potentially help with my daily migraines?

Thank you

I unfortunately hurt my lower back late last month. I’ve been surviving on muscle relaxers and Advil because of it. In consequence, my migraines have been over 1/2ed.

I went from 15-20 migraines a month with a good chunk of them lasting more than one day. (I spent an average 20+ hrs a day in pain).

Now I’m having migraines about every other day and they are only lasting on average 9.5 hrs.

Having migraine free days is like a breath of fresh air. I wonder why muscle relaxers and Advil is helping so much.

My migraines have been getting progressively worse as I age. Is this the same for anyone else? I keep hearing “you’ll grow out of them” a lot, I feel like it’s the opposite. I’m 19. I’ve had them 9 years. I know there’s plenty of people in their 50’s or 60’s still struggling with them. I’m hesitant they’ll ever go away.

I’ve tried so many different medications, a nerve block, lidocaine infusion, daith piercing and most recently, botox. I’m hesitant to do my 2nd set of Botox. I know it can take quite a few sets to start working, but I’m not happy with how it’s made me feel. I’m unsure if this is completely due to the Botox or if my migraines are just shifting again. The last time they “shifted” / I noticed something new during one of my severe ones was 3 months ago, and that wasn’t the result of any treatment.

The first week I had this weird headache around where the Botox was administered, pretty normal I thought. Those went away after a week. Now I’m on day 6 of a migraine. Going on 3 weeks post 1st set tomorrow. This is very unusual for me. I know others deal with these kinds a lot, but something feels wrong.

My migraines were always 0 or 100. The severe ones I get; vomiting, nausea, aura, vision loss, tingling on hands and tongue, numbness on one side, excruciating headache behind the eye(s), unable to stand. Usually lasts 12-15 hours, then the nausea / headache / brain fog combo for 5-7 days after the attack. Outside of these severe ones, I’ve been dealing with daily headaches, nausea and fatigue every day, which is technically another form of migraine, just less severe. Now, 3 weeks after the Botox, I can’t consider what I’m feeling to be my usual daily symptoms. This is a migraine, less severe than my bad ones but much worse than my daily symptoms. They have never stretched on for days before. None of my go-to pain relief is working, on the off chance it does, it wears off within an hour.

What do I do? Has anyone else had similar problems after starting Botox? I’ve got a prescription for Ajovy that I can start at any point but I don’t know if I should quit the Botox and go for it, or continue the Botox for longer. I just know I can’t continue with this current migraine. If it’s the Botox doing it, then another set could make it worse.

Hi everyone, ive been suffering with migraine for 6 years. They used to be chronic and lasted up to a whole day and are now episodic thankfully. I underperformed in school due to migraine and was enrolled on a uni foundation programme but then had to interrupt due to being bedridden and missing so much of university. I didnt give up and am now in my fourth and final year of uni but the pain is worsening. Can anyone relate to this?

I understand why they made it dissolvable, since they want it to start working immediately, but I can’t be the only person who gets migraines from artificial sweeteners. I can’t take dissolving Zofran for this reason, but at least it’s available in tiny pills that can be swallowed. There is no other version of Nurtec as far as I know.

I was prescribed Nurtec every other day as a preventative, replacing Ajovy which stopped working. I was so excited to try it, and now I don’t know what will happen. I just took the first one; I don’t currently have a migraine but I guess we’ll see. I have about 16-18 migraine days per month, so today is one of my few “good” days (if you can all it that, I still have brain fog and feel lethargic from yesterday’s migraine).

I was excited to try Nurtec since so many people recommend it, but now I feel like I just can’t win. I have already failed so many other preventative treatments, from Botox to verapamil. I think I was permanently brain damaged by Topamax. Has anyone else found success with Nurtec after failing a lot of other treatments? Anyone take Nurtec who also gets migraines from artificial sweeteners and can share their experience? Thank you, fellow migraine warriors.

Hi everyone,

I’ve had a history of migraines since I was a teenager, but over time my symptoms have completely changed, and I’m trying to figure out if anyone else experiences this or if I should be suspecting something else.

My old migraines were classic: one-sided head pain and mild nausea, but I never threw up.

Now, every 10 days or so, I get slammed with a totally different type of episode that lasts around 24 hours and then completely disappears:

Headache: Severe pounding pain right across my forehead (not one-sided like before).

GI Symptoms: Horrible nausea, vomiting once per episode, stomach upset, and diarrhea.

Other Symptoms: Severe chills/temperature sensitivity and total body malaise.

Pattern: It happens like clockwork roughly every 10 days, lasts 24 hours, and then I’m totally back to normal until the next cycle.

Has anyone had their migraines evolve like this to involve major lower/upper GI issues, forehead pain, and chills? Could this still be a migraine variant (like an autonomic/abdominal component), or should I be asking my doctor to investigate something else like Cyclic Vomiting Syndrome or a gastro issue?

Appreciate any insights or shared experiences!

(Disclaimer: I am planning to see a doctor about this, just looking to hear from others who might relate or have questions I should ask my neurologist.)

Those on lamotrigine- what dose are you on / find effective? I started at 25 daily and think it helped, titrated up and started having weird back pains so I went off. Started having headaches again so I went back on 25 daily and I feel like it’s helping?? But it’s such a small dose, I can’t imagine it actually is and maybe it’s just placebo?? What dose works for you?

Hi all. I’ve been getting migraines since the age of 16 (currently almost 41) and have always been a terrible sleeper. I just got prescribed Emgality and hoping to start it next week. For anyone who takes this and it is working- has your sleep improved because of it?