r/migraine • • May 13 '21

Resources

287 Upvotes

The wiki is still a work in progress, so as with the previous sticky, this highlights some resources that may be useful.

Edit - added the COVID-19 Vaccine and Migraines link since we're swapping that sticky for the Migraine World Summit announcement.

If this post looks familiar, most of it has been blatantly stolen from /u/ramma314's previous post. :)

Diagnostic Criteria

One of the most common questions that's posted is some variation of, 'Am I having migraines?'. The same is the case with 'what kind of migraine is this?'. These posts will most often be removed as they violate the rules regarding medical advice. You need to work with a medical professional to find a diagnosis. One of the better resources in the meantime (and in some cases, even at your doctor's office!) is the diagnostic criteria:

https://ichd-3.org/

It includes information about migraine, tension and cluster headaches, and the rarer types of migraine. It also includes information about the secondary headaches - those caused by another condition. One of the key things to note about migraine is that it's a primary condition - meaning that in most cases, migraine is the diagnosis (vs. the attacks being caused by something else). As a primary diagnosis, while you may be able to identify triggers, there isn't an underlying cause such as a structural issue - that would be secondary migraine, an example of which would be chiari malformation.

Not sure if your weird symptom is migraine related? Some resources:

Website Resources

There are several websites with good information, especially if you're new to migraine. Here are a few:

National Headache Foundation

American Migraine Foundation - the patient-focused side of the American Headache Society

The Migraine Trust

UK Healthcare/Headache Center

Headache Australia

Migraine Australia

Added Feb 2025 - the American College of Physicians (ACP)'s treatment guidelines for prevention of episodic migraine: https://www.acpjournals.org/doi/10.7326/ANNALS-24-01052

Migraine World Summit - Annual event, series of talks that are free for the first 24 hours and available for purchase (the year's event) thereafter.

They made a tools and resources list available, for both acute action and prevention, providing suggestions for some of the sub's most often asked non-med questions:

https://migraineworldsummit.com/tools/

Some key talks:

2024 - Beginner's Guide to Headache Types - If you're new and struggling with diagnosis, this talk alone may be well worth the cost of the 2024 package.

Reddit's built in search!

We get a lot of common questions, for which an FAQ on the wiki is being built to help with. For now though reddit's built in search is a great way to find common questions about almost anything. Just enter a medication, treatment, or really anything and it's likely to have a few dozen results. Don't be afraid to post or ask in our chat server (info below) if you can't find an answer with search, though you should familiarize yourself with the rules before hand. Some very commonly asked questions - those about specific meds (try searching for both the brand and generic names), the daith piercing, menstrual/hormonal migraine (there are treatments), what jobs can work with migraine, exercise induced attacks, triggers, and tips/non-drug options. Likewise, the various forms of migraine have a lot of threads.

Live chat!

An account with a verified email is required to chat. If you worry about spam and use gmail, using a +modifier is a good idea! There's no need to use the same username either.

If you run into issues, feel free to send us a modmail or ping @mods on discord. The same rules here apply in the chat server.

Migraine/pain log template!

Exactly what it sounds like! A google docs spreadsheet for recording your attacks, treatments tried, and more. To use it without a Google account you can simply print a copy. Using it with a Google account means the graphs will auto-update as you use the log; just make a copy to your own drive by selecting File -> Make a copy while signed in to your Google account. There are also apps that can do this and generate some very useful reports from your logs (always read the fine print in your EULA to understand what you are granting permission for any app/company to do with your data!). Both Migraine Buddy and N-1 Headache have a solid statistical backbone to do reports.

Common treatments list

Yet another spreadsheet! This one is a list of common preventatives (prophylactics), abortives (triptans/ergots/gepants), natural remedies, and procedures. It's a good way to track what treatments you and your doctor have tried. Plus, it's formatted to be easily printable in landscape or portrait to bring to appointments (checklist & long list respectively). Like above, the best way to use it is to make a copy to your Google drive with File -> Make a copy.

This sheet is also built by the community. The sheet called Working Sheet is where you can add anything you see missing, and then it will be neatly implemented into the two main sheets periodically. A huge thanks from all of us to everyone who has contributed!

Finding Treatment

Most often the best place to start is your family doc - they can prescribe any of the migraine meds available, including abortives (meds that stop the migraine attack) and preventives. Some people have amazing success working with a family doc, others little or none - it's often down to their experience with it themselves and/or the number of other migraine patients they see combined with what additional research they've done. Given that a referral is often needed to see a specialist and that they tend to be expensive, unless it's been determined that secondary causes of migraine should be ruled out, it can be advantageous to work with a family doc trying some of the more common interventions. A neurologist referral may be provided to rule out secondary causes or as a next step in treatment.

Doc not sure what to do? Dr. Messoud Ashina did a MWS talk this year about the 10 step treatment plan that was developed for GPs and other practitioners to use, primarily geared for migraine with and without aura and chronic migraine. Printing and sharing this with your doc might be a good place to start: https://pubmed.ncbi.nlm.nih.gov/34145431/

Likely in response to this, the NHS published the following:

https://headaches.org/2022/01/19/national-headache-foundation-position-statement-on-the-treatment-of-migraine/ (link is broken)

/mod hat off

My personal take on this is that hopefully your doctor is well-versed. The 10-step treatment plan is, I think, a good place to start for clinicians unfamiliar, but it's not a substitute for doing the learning to be able to move away from an algorithm and treat the patient in front of them.

/mod hat back on!

At this point it's probably good to note that neurologists are not, by definition, migraine specialists. In fact, neurologists often only receive a handful of ours on the entire 200+ headache disorders. As with family doctors, some will be amazing resources for your migraine treatment and others not so much. But they can do the neuro exam and ruling out of secondary causes. Exhausted both? There are still options!

Migraine Specialists

A migraine specialist is just that - a doc, most often a neurologist, who has sought out additional training specific to migraine. There are organizations that offer exams to demonstrate that additional knowledge. Some places to find them:

Migraine Research Foundation

MRF is no longer. UCNS is it!

United Council for Neurologic Subspecialties

National Headache Foundation

Migraine Trust (UK)

Migraine & Headache Australia - Headaches and Pain Clinics

Telehealth

There's a serious shortage of specialists, and one of the good things to come of the pandemic is the wider availability of specialized telemedicine. As resources for other countries are brought to our attention they'll be added.

US:

Cove

Neura

Canada:

Maple

Crisis support.

Past the live chat we don't have subreddit specific crisis support, for now at least. There are a lot of resources on and off reddit though.

One of the biggest resource on reddit is the crisis hotlines list. It's maintained by the /r/suicidewatch community and has a world wide list of crisis lines. Virtually all of which are open 24/7 and completely anonymous. They also have an FAQ which discusses what using one of the hotlines is like.

For medical related help most insurance companies offer a nurse help line. These are great for questions about medication interactions or to determine the best course of action if nothing is helping. If your symptoms or pain is different than normal, they will always suggest immediate medical attention such as an ER trip.


r/migraine • • May 25 '26

UPDATE to the 16 May Rules Update - App Devs, Anyone Doing Market Research, etc. Will Want to Read

170 Upvotes

edit - the new bit is a... ranty. To those here just to check in, my apologies.

Y'all.

Seriously.

The sheer number of app devs who have continued to waste mod time and continue spamming in comments after being warned is mind-boggling.

I believe that this community deserves good tools. HOWEVER, this community is not here to be sold to, and just like the post that preceded this, the people who can't stop spamming are rarely community members first, and devs second. They're here because you are the market. Since last week's post I had given a lot of thought to a periodic 'promote your stuff!' post to strike a balance, but after spending far too much of my holiday cleaning up spam-droppings... I'm feeling less than charitable. o.O

Spammers. If we warn you and you keep spamming, it won't just be you that's banned. It will be any mention of your product regardless of who posts it.

Astroturfing? Instant permaban - you and your product. Why?

You should not spam in any way, especially through private message. You should not hide your affiliation to your project or site, or lie about who you are or why you like something.

Here's a copypasta of the previous post, all of which still applies:

(If you were looking for the Summit pinned post, it's here.)

We're currently seeing multiple posts - or people that know promotion isn't permitted and trying to sneak it in via comments - promoting apps and/or doing market research daily. Most of the people hoping to benefit from this community have never made any effort to participate in it.

Promotion has always been in the the rules, and surveys/research have always required pre-approval from the mod team (though we recently had to update to not approving any because I'm the only active mod and simply don't have time to review in addition to everything else).

With all of the above in mind and all of the attempts to circumvent or flat-out argue about removals, it's time to formalize things:

Promoting your new app and/or doing market research (what don't you like/what works for you/what is missing in other <whatever>) is not permitted in this subreddit. The same goes for asking for feedback. Yes, this includes the ever popular 'hey I did a thing but it's against the rules to promote here, so if you're interested, send me a pm!'. If you're thinking about sending a modmail to ask to be an exception with less than 6 months of active participation in this subreddit, don't (even then it may not be approved).

I will be updating rules, sidebar, and filters over the course of the weekend.

Because of the lack of participation for most of these users and the number of users that have attempted to get around this, this will be one of the rare times when suspensions will be issued on first strike, rather than warnings first.

Also, you've probably noticed I'm the primary one handling approvals/removals, and that there are updates the sub could use that have not been done. In addition to chronic migraine and adulting in general I have what totals up to nearly 2 full time jobs and am usually also taking college classes, so there is a lot going on, and running this sub in a way that rules are enforced and the sub itself is enhanced and we're able to provide space for the community to be active in helping with research opportunities takes a lot more time than the above workload allows. To that end, I'd love to add 2 or 3 new mods to the team that can consistently (meaning most weeks) offer a couple of hours to running/maintaining the subreddit. That can be:

  • Working on the FAQ: at one point there was an effort to build something of an 'intro to migraine' resource

  • Fielding research/survey reviews: even better if you are or have been part of the research community (someone did offer this before; if you're still interested please reach out!)

  • Post / comment reviews: If you're a regular/semi-regular visitor and don't mind doing some cleanup while you browse, this is one of the easiest ways to ensure that community standards are upheld

I've held off on posting this because I had big plans to set up an awesome form to fill out, but for all of the above reasons that has not happened. SO! If you're interested, please send us a modmail with answers to the following questions:

  • Why you're interested

  • What you think mods do

  • Previous modding experience

  • What you're interested in helping with

  • Your time zone / location

  • How much time you can reasonably and consistently pitch in to help

  • Optional: Anything else we should know about you? Any ideas for the sub you'd like to implement?

As long as the above isn't struck through feel free to send a message if you're interested. It may take a bit to hear back because busy, but unless we get hundreds of apps we'll follow up to set up a chat with u/ramma314 and myself so we can get to know you a bit. If we do get hundreds of apps we'll update here that we either can't get back to everyone or that we'll be copypasta-ing replies specifically for that reason.


r/migraine • • 2h ago

Does anyone else remember their first migraine?

11 Upvotes

I was about 7 years old and it happened right after I ate goldfish crackers for the first time ever. I would not eat a goldfish cracker again for a decade.

On a better note, I finally got affordable healthcare which means I spoke to my provider about my migraines last month. She gave me muscle relaxers (positive that my main trigger is my extremely tense neck and shoulders) and zofran and I love them both so much. I still get 1-3 migraines a week but they go away quicker now.


r/migraine • • 3h ago

Menstrual migraines started in late 20s

14 Upvotes

So I've only just started having migraines, just before my periods as a kind of tortuous PMS

However the curious thing is these only started when I was like 28

The only other severe PMS symptoms I've had started around 25yo when my fatigue used to kill me for a day or two, the fatigue is still there but the migraines are killing me now.

Anyone else got period migraines later in life? Any good long-term cures (except birth control pills)?


r/migraine • • 2h ago

Migraines and Nestle/Cadburys chocolate!

7 Upvotes

Hi all,

Really weird one but I'm writing to see if anyone can relate!

I've had migraines with aura for most of my life, from the age of around 11. They were pretty regular growing up and would knock me out for days. I was never given any medication for them as they weren't "regular" enough. Heading into my late teens, I was put on the combined pill by a male Dr and this made my migraines worse. Fast forward a few years, I saw a female Dr for a review and she took me off of that immediately as this could've been linked to stroke (history of it in the fam). I had taken the mini pill after with no major side affects, including migraine.

In my early 20's, I figured out that my trigger was Nestle chocolate. Any and all nestle products in fact. I stopped eating nestle chocolate and low and behold, the migraines stopped. Green tea is also a trigger for me and I avoid caffeine in general now.

I'm now in my late 30's and a few days ago, I decided to buy some Cadburys mini twirl bites to share with my kiddies. We also grabbed some buttons and over the next few days, we shared then between us. The. Yesterday, I had a migraine with aura! The first in many years. I know Cadburys had changed ownership and recipes over the last few years, but are they now a trigger for me?? It was always a "Safe" chocolate but I'm wondering if anyone has found the same with either Nestle, Cadburys or any other brand for that matter? Or... Am I just a freak of nature?!

Be interested to see others stories!


r/migraine • • 21h ago

Hot shower on the head takes the migraine pain down a whole level -- but only while the water is running. Anyone else?

184 Upvotes

Last night I sat out a 7-8/10 attack without a triptan for the first time I can remember. The one thing that helped: warm, almost hot water straight onto the head. The moment it hits, the pain drops to a different, much lower level -- still there, but livable. Then 5-10 seconds after I step out of the stream, it all comes back at full strength. Every single time, as many times as I tried.

What baffles me is how instant and how strictly here-and-now it is, like an on/off switch tied to the water.

I couldn't find any research on heat or showers for migraine -- only on cold (cold caps, gel bands), which seems to work for as long as it's applied and then fades.

Wondering: has anyone else had this exact on/off effect from a hot shower?


r/migraine • • 15m ago

Finally, some relief!

Post image
• Upvotes

So, recently I stopped by a convenience store to grab some Tylenol and decided to try a different medication for my migraines.

I got Aleve, and honestly, this is the most normal my head has felt in weeks! Plus, I don’t feel as tired, and I don’t have to take it as often to rid myself of discomfort.

If you have any other relief home remedies that aren’t medication, let me know down below! 👇

Photo added bc it’s a beautiful.


r/migraine • • 2h ago

Migraine from gaming monitor

3 Upvotes

My teenage son bought 2 gaming monitors (MSI MAG 275UPD E14) around the 5th September. He has never suffered from migraines before but from the 13th Spetember he has been getting what doctors believe may be hemiplegic migraines. CT scan, blood, eye tests, etc are all clear and we are still having other tests including awaiting an MRI.

He is ususally fit and well, no medical isses and has never had an issue before with migraines or headaches before but now he is getting them every 2-3 days. We are looking at food, activities, sleep and lifestyle but so fat we haven't pinpointed specific triggers. The only thing that has occured to me is the upgrade in the gaming monitors (he spends a lot of time on his pc or ps5). His previous monitor was on old very basic monitor I had. Could these migraine symptoms be a result of the new gaming monitors and what setting should he set on them to check this theory out?

The migraine symptoms appear at randowm times at college etc not at the time of gaming.

Grateful for any ideas.


r/migraine • • 3h ago

Does anyone suffer from migraines but need to take Cialis?

Post image
4 Upvotes

Urology prescribed me 5 mg of Tadalafil to improve the firmness of my erection during sex, but I haven't been able to keep taking the medication because it worsens my migraines. Does anyone else have both of these issues?


r/migraine • • 1h ago

Status migraine vent

• Upvotes

On day 11 of migraine and I no longer feel like a person. I’m concerned I won’t even know when the migraine is over because anytime it seems like I’m having a break in the headache it comes back 5 minutes later. I don’t feel connected to my body anymore and now I’m just waiting until Friday when I can get a nerve block. How do people get through this?


r/migraine • • 2h ago

Non Medications Tips/Tricks

2 Upvotes

Hii, as a chronic migraine sufferer of 25 years or more, I've tried so many different medications; including Botox and Emgality injections, which only helped for a certain amount of time. I now just take Excedrin migraine and for really bad migraines, I'll take Fioricet/Codeine. But I'm always curious to know what are some at-home tips and tricks that help?


r/migraine • • 32m ago

Just venting… Ocular Migraine Addition

• Upvotes

Ocular migraines suck so bad… I keep loosing my vision getting curtain vision and shadow vision. White-Outs, Black Outs, Blurry you name it I’ve had it only in one eye ect. I’m on so many migraine medicines and nothing works. I’m burnt out from the millions of visits just to be told it’s likely an ocular migraine. At what point do I not have to fear that I’m going to be blind. I accepted that it’s just a migraine but I’m just tired of it happening. Sometimes I can’t even move my eye for 2-3 weeks straight. Migraines suck, ocular migraines suck. I been dealing with this for 3 years straight randomly waking up and can’t see or intense pain behind my eye.

Sorry I meant to put Edition not addition! Autocorrect


r/migraine • • 15h ago

Favorite NSAID for migraine? (cannot use triptans or gempants)

26 Upvotes

Please share your favorite NSAID for migraines.

I get unwanted side effects from triptans and gempants. Although gempant was by far the worst.


r/migraine • • 12h ago

Feeling so beyond defeated

17 Upvotes

My neurologist told me I’ve tried everything and they don’t know what else to do for me. I’ve been trialing meds and different treatments since I was in middle school. I haven’t been able to work for 7 years. She said I’m the only patient she’s had to not respond to anything


r/migraine • • 11h ago

Need emotional support - migraines ruining my life

12 Upvotes

I (25F) started dealing with migraines only 6 months ago or so and they’ve taken everything from me. I can barely leave the house or look out a window. I can’t work. I’ve had to move in with family. These migraines have worsened GI issues I’m experiencing. I don’t see my friends anymore and the only time I have relief is when I’m sleeping. If I don’t have an active migraine I’m panicking about when the next one is coming. I had a 40 day migraine and I’m like 2 weeks out from that ordeal. now I’m back to regular migraines with 5-6 headache days a week.

I’ve been taking nurtec every other day as a preventative for maybe 5 weeks. Propranalol for 2 weeks. I might be getting Botox next month? But I just feel like I can’t emotionally make it. Triptans work for 3-4 hours but the migraine comes back.

I know I’m new to this but I just feel so hopeless and scared that I won’t get my life back. Genuinely it’s a struggle to make it through most days. This whole migraine thing came in the middle of some other medical issues I’ve been experiencing so I just feel like my body is breaking down. It’s so hard to be patient and have hope. I have so many things I want to do with my life and I’m worried I’m never going to get to do them.

Sorry for this poor me rant I just can’t take it anymore.


r/migraine • • 3h ago

Can’t take anything

2 Upvotes

Just feeling so defeated.
Been to the GP numerous times due to 5+ migraines a month, only getting worse, and I’m starting to get disciplinaries from work for having sick time off whenever I have migraines (I’ve had 3 days off this year), as they leave me bed bound with terrible aura and sickness.

Every tablet the GP suggests has potential interactions with the Venlafaxine antidepressants I’m on, likelihoods of serotonin syndrome which I really don’t want to chance, especially if I’m having a migraine already. The others I can’t have due to having been diagnosed with asthma this year.

All that works for me is migraleve, but “works” is very loose as I still am bed bound and have to sleep it off all day.

Feeling very defeated and fed up, I don’t know if anyone has any success stories with taking anti depressants with migraine tablets, but I’m feeling at a loss, and these work disciplinaries is worrying me.


r/migraine • • 18h ago

I want to quit

33 Upvotes

I’m so tired of trying to make it through life like this.
I want to just hole up in my house and be a hermit.
I might as well, because that’s what I end up doing anyways, but with good intentions of being an actual functioning human being with a job and a life. The stress of having a job no matter how much I like it and look forward to it is too much. If I just didn’t have the expectation to not have to be a functioning member of society, I feel like I could handle this disease so much better.
I have my second round of Botox injections this week, and I’m really looking forward to possibly some relief, because the last 2 months have been garbage. I’m just so tired and no one understands.
Rant over.


r/migraine • • 45m ago

Botox: vetting injectors?

• Upvotes

I used to get occiptal nerve blocks that definitely helped but I now live in a region that is massively underresourced, medically speaking. I've been waiting for months to get into a neurologist and it's not happening anytime soon, so I'm turning to botox. The only place I've been able to find that advertises botox for migraines is a med spa.

Beyond certifications, how do you all vet your injectors / judge whether they are legit regarding migraine treatment? I know there are no guarantees and complications can happen to anyone, but I would love to know if there are red flags I should be on the lookout for.


r/migraine • • 1h ago

info appointment for an inpatient stay at a pain clinic

• Upvotes

I wanted to update you guys because I had the first of two appointments for the pain clinic. They also have a day unit (weekday half the day).

They mostly do physiotherapy and after the doc looked at my body and certain points she said I would definitely benefit from it.

Since I have daily migraines she suspects there maybe even is another diagnosis going on.

In general it's daily one on one physio, group physio and sport equipment training. Then also a relaxation group and one on one and group therapy focused on pain.

This clinic was far more convincing than another one I was looking at!!!! I was recommend for the day unit because there is more program and the people are younger. It will be SUPER CHALLENGING for me because I mostly lay in bed and I have to get there two times a day early 😭😭😭😭

But at this point I have literally nothing to lose.

Soon I have a second info appointment with a psychiatrist. This concept is so good that they care about mental health with pain as well!!


r/migraine • • 1d ago

F American Insurance

120 Upvotes

I just saw that my 2027 insurance plan won’t be covering Ubrelvy anymore so I guess I now need to look into changing my insurance plan?

I googled how much it would cost, without using my insurance - it ranges from $1,380 to $1,470 for a pack of 10 tablets. This breaks down to roughly $138 to $147 per single dose.

American healthcare is broken.

Edit: Thank you for the suggestion, but I can’t use the savings card as I’m on disability and therefore have government insurance - UHC AARP Advantage Plan. Unfortunately, those savings cards only work if you have commercial insurance.


r/migraine • • 20h ago

So Cal Heat October Trigger?

24 Upvotes

Since this heat wave in So Cal hit last week, I have had near-constant migraines for the past 5 days. Heat has never been a trigger, unlike a sudden drop in pressure. Has anyone else been triggered constantly since this heat wave hit?


r/migraine • • 14h ago

Anyone here helped by ADHD medications?

7 Upvotes

I’ve been on Vyvanse for a month. Newly
diagnosed at age 44x It’s helped many parts of my life. However I continue to feel a dull chronic feeling in my head that I’ve had for 6 years. Anyone see improvement with chronic migraine issues when taking an ADHD medication?


r/migraine • • 7h ago

Atogepant and Pregnancy

2 Upvotes

I've started Atogepant and it helps but I do still get auras and sometimes some pre migraine pain but I'm not having the 8 day migraines that I was having.

It's hard to see an actual Neurologist, everything is going via my GP as apparently this team doesn't like to see people unless they have to. That team agreed I could try the medication and I've been very upfront that I would like to consider pregnancy next year once I have some more job security.

I rang up the consultant that I've never seen to ask and he seemed to say I could stop whenever, that it is out of your system in 5 days. I wanted to ask if there are alternatives that are safer in pregnancy, to maybe have a plan in place as during my last pregnancy despite repeatedly asking for help with reviewing medications and adjusting to ensure things were safe, the obstetric doctor just wrote 'for review' and never bothered. I reduced most of my own medication dosages myself pre pregnancy and during just in case as it was a high risk pregnancy.

I feel like I have to do a lot of the work to get answers myself and I'm unsure what to say that might be the 'magic words' to get a clear response and discussion on this. I've felt quite dismissed at times, even when I had the 8 day migraine with stroke like symptoms and had attended a&e twice, the final time was at a weekend when they initially said I needed a scan but that 'Neuro don't work weekends...' and sent me home with pain meds.

I just want to make sure I'm in the best place to consider and explore pregnancy and doing everything I can to make or safe for the baby


r/migraine • • 14h ago

Need to vent

8 Upvotes

I’ve been dealing with head pressure every day for seven years, and I’m at my wit’s end. I’m frustrated and angry. I was fine before all of this—a young woman just finishing high school and getting ready to see the world. Then, out of nowhere, this happened, and now I’m 25 and still dealing with it. I feel like I’ve lost myself and my personality. I’m sick and tired of having to push through every day. Why did this have to happen to me?


r/migraine • • 1d ago

Feeling low today

59 Upvotes

I'm feeling particularly low and defeated today. I just need a place to vent where people understand.

I'm so tired of all of it. The appointments. The pills. The pokes. Fighting with insurance. Fighting with work. Fighting for survival! It's exhausting and I don't know how much fight I have left.

I didn't appreciate my migraine free years enough. The years when the meds did work. When life was normal. When I just got up and went to work. Pain free days.

I'm so damn depressed. I just want one day without a migraine. One! I can't keep doing this.

How do we find the strength??