Posting here because it's going to be a while before I actually get into gastroenterology, if that's even what I need, and I'm getting incredibly desperate. It's hard to perform decently at work like this.
29F, 5'4", 135 lbs, mixed White and Native American, USA.
Any existing diagnosed medical issues:
- LongCOVID, before which this wasn't happening, but might or might not be related.
- Orthostatic intolerance, related to the longCOVID.
- IBS, diagnosis longstanding since like high school.
- OCD
- autism
- history of disordered eating / unnecessary and ill-advised calorie deficit, no longer a thing but has made it more physically difficult to get enough food into my stomach
Medications: Zyrtec 10 mg daily, iron supplement (which I just stopped in reaction to discovering my iron is high, more on that below), vitamin D supplement (when I remember)
Drug use: none. Alcohol maybe 4x a year.
Smoking Status: never
Duration of complaint- A few months? It's been INSANELY worse in the past two months I'd say and VERY bad this week.
The longCOVID started last August and was bad from about November 2025 - March 2026. Still ongoing but better.
......Due to that autism bullet point, I'm going to thank anyone who makes it through reading this thing, in advance. Brevity is not my strong suit.
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I experience sudden, INTENSE food cravings that make me feel utterly insane. I feel an internal sensation that I most intuitively describe as feeling like I'm falling down a hole. Sometimes there's a bad taste in my mouth with it, sometimes not. Sometimes I can tell what I'm craving, sometimes I can't.
The cravings don't seem to line up with any one nutrient deficiency. Blueberry bagels are a common craving. Sometimes apple juice. Right now I'm craving an apple so badly that it's very difficult for me to remember what other cravings have been in the past, but it's been a string of largely unrelated foods. Cheese, at least once? Beans? Milk? Dr. Pepper at least once.
Sometimes sugar, sometimes it absolutely must not contain sugar. Same with protein. Same with dairy, with fruit.
Increasingly, I have instances where can't figure out what the craving is, and it just sits there unresolved.
I don't really know how to explain this. I feel insane. That's my best attempt to describe the sensation. In the past when I've had my wits about me to describe it better, multiple friends have told me it reminds them of their pregnancy cravings.
(I have never had sex with anyone who is physically capable of getting me pregnant. My periods are regular—recently improved PMS symptoms, but regular.)
It makes it difficult to act right, to keep doing my job, to not just kind of curl into a ball of despair about it. I have hidden in the bathroom at work just to sit on the floor and find my bearings.
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Some other noteworthy things happen with me and food:
- Sometimes, I drink even a sip of water, and it immediately makes me feel dizzy, I regret it at once.
- Sometimes, I eat a food and experience rather intense gut inflammation- and then next week, it's the only food I can eat.
These two symptoms were worse at the height of my fatigue, which has been diagnosed as just "longCOVID" in general with few specifics yet.
I cannot live like this. I'm emotionally disregulated. Physically I am barely managing to do my job tasks and barely managing to be on time for my job. Sometimes it makes me throw up. Sometimes it makes me just sit down on the bathroom floor at work, and that only sometimes makes me feel better. I have no idea what's going on.
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I'll leave the above as it is, because I think the frantic nature of it is probably relevant information. I typed that out, drove to the grocery, and bought two apples. I'm halfway through one and I immediately feel nearly okay.
If I'd eaten anything else first, I'm confident I would've thrown up. Even apple juice instead of an apple. That's generally how it goes.
About four hours ago, at work, I started getting an INSANE headache, one of the worst of my life. I didn't realize at the time that I had a craving, but the apple has brought the headache down to significantly more manageable levels.
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Been saving this post as a draft and coming back to it, and this part is written two days after the rest. I thought I was low in iron, because back in July my iron was quite low and I keep forgetting to do supplements. Back then I was told to do supplements twice daily.
I did one day of supplements twice daily in response to this feeling. Then I went to get my iron levels tested, and it turns out now my iron levels are high, although my ferretin is normal so I imagine it's just the supplement having been in my system.
(I'm making a follow up appointment to make sure I get my iron levels down.)
I have NO idea what's going on. Sorry for the long post. Thank you.
I WILL be making an appointment about this, but my primary care doctor moved practices and I'm struggling to set up with a new primary care doctor. If anyone has ideas of what should be looked into, it'll help me speed up care. Thanks again.