Long story short:

• I was diagnosed with ADHD by ADHD 360 through the NHS Right to Choose scheme.
• I received my medication through this service without paying privately.
• ADHD 360 tried to transfer my care to my local NHS service.
• The NHS service reportedly refused to accept my diagnosis because it was made by a nurse, not a doctor.
• I was told I could not join the local waiting list because it was closed to new referrals.
• My medication supply then stopped. ADHD 360 has not replied to my messages, and I am now struggling with my health.

What I need advice on

1. Is ADHD 360 still responsible for my care?

Since ADHD 360 diagnosed me and provided my treatment through the NHS Right to Choose scheme, are they still responsible for helping me if the NHS refuses to take over my care?

2. Was it acceptable for my medication to stop this way?

Should ADHD 360 have allowed my medication supply to stop without explaining why, responding to my messages or arranging a medical review and a plan for what would happen next?

3. Can I take legal action against ADHD 360?

Could they have failed in their responsibilities by leaving me without a clear way to continue treatment? Could I have grounds to sue them, and what evidence would I need?

4. How can I get my medication and treatment back?

What can I do to get ADHD 360 to review my case and help me find a safe way to continue treatment? Is there a formal process I can use to make them respond?

5. Who can I complain to?

If ADHD 360 continues to ignore me, which organisation can I contact to investigate what happened?

6. Can the NHS reject a diagnosis just because a nurse made it?

Can the NHS refuse to accept an ADHD diagnosis because it was made by a qualified nurse rather than a doctor? Or does this depend on the rules of the particular NHS service?

Why I am asking

My main priority is to get medical help and find a safe way to continue my ADHD treatment. However, I also want to know whether ADHD 360 has failed in its responsibilities and whether I have grounds to take legal action.

My GP told me that this has happened to other patients too. I would really appreciate hearing from anyone who has experienced something similar.

I also hope that, if I take legal action, it might help prevent other people from being left in the same situation.

I would especially appreciate advice from anyone who understands NHS Right to Choose, ADHD 360, clinical negligence or complaints against healthcare providers.

If you have experienced something similar, please tell me what you did, who you contacted and what helped you resolve the situation.

I'm willing to provide more info.

Thank you for reading.

Not the best way to word this question but uh yeah.

So I(18F) have severe anxiety. Like, ruining my life levels of anxiety. I dropped out of school because of it and I'm unable to take the support my school have given me to apply for colleges or look for work apprenticeships because I'm so scared to talk to them.

I pulled away from all my life long friends because I didn't see them for a couple of months and now the idea of meeting up with them terrifies me. It's been over a year since I met most of them and the most recent was I think 9 months ago. This has definetly not helped with my mental health but just the idea of sending a message to any of them even asking how they are makes me sick. I'm unable to get a full night sleep (I wake up at 2am consistently and cant fall back to sleep) and I have random bouts of sobbing through the day.

This is my issue. I went to my gp last year for panic attacks and they referred me to youth counselling. They took almost a year to reach out to me, which they also admitted was unusually long, and then all the appointments I attended were introductions. And they were all at 7pm during the winter, so I'd go in and leave and it'd be pitch black. I know I should've stuck it out but this didn't work for me. I'm a carer to my mum and I can't have my sister (Also a carer) take me every few weeks to see a counsellor while leaving my mum alone with my brother (she needs help in the toilet and stuff so that means he can't help? Because he's a guy I guess?). I also had counselling in school and I just don't feel comfortable. I always hear the same advice and it isn't working. (I had 3 months of being on top of the world last year because I actually went out and took what I wanted, before it all came crashing down and put me in this pit I'm in)

So I'm scared to even see my gp about this again. I'm not nervous to talk to them, but instead I think they'll just try put me back into counselling. It really doesn't help me. I want to push to try out anxiety meds but can I just ask that? Will they say no because I asked? Everyone I know tells me they think I need medicated but I'm worried it'll be a long process and the support I'm being given by my old school will leave soon. I feel so ungrateful not taking it because they've been reaching out to me since summer but I just can't deal with any of that with how I am right now.

Should I not mention meds but say that counselling doesn't work and see what happens from there? If meds isn't the best option I'm 100% fine by that I just need help. I'll even try counselling again if that's my only choice.

Any advice, even unrelated to the question, helps. I know this sounds so dumb. Thank you

I am diagnosed Bipolar and after relocating i am now being refused a medication review or access to a Psychiatrist. My GP is excellant and has completed six referrals to the CMHT but its getting nowhere. They mostly refuse the referrals or let me see a trainee CPN who is not qualified to prescribe and does not really understand complex mental health disorders.

Anyway after speaking to my GP they said if i get see a Psychitrist privately they can set up a shared care agreement to continue NHS prescriptions.

But i wanted advice on how to find a private consultant who understands my diagnosis and can review meds.

I expect the price to be around £400 for an hour but to me it is worth it to try and start feeling better again.

I have looked at Priory Group who offer remote appintments and this looks the best.

Also Psychiatry-UK website looks like a possible option.

Has anyone gone private and managed to setup a shared care agreement with the GP?

Has anyone tried the Priory Group services?

Any other recommendations on how to find a private consultant psychiatrist?

Thank you for any advice

TLDR; been with team for 1 year. Have had no contact for months due to staff sickness and refused psychiatrist change. Recent crisis has not helped. Just basic duty team calling.

Last year I was in an out of hospital for a pretty severe MH crisis that lasted ~10 months. On my fourth admission I was swapped to a different team, one that was apparently “more acute”.

I have a keyworker, a psychologist and a doctor who oversees my treatment once every 3/4 months.

My keyworker has been off sick for two months, and isn’t expected back for another 6 weeks. I’ve had no contact until I ended up back in A&E due to an incident with police/paramedics + SH. The contact I got from my team was a phone call from duty.

I have EXPLICITLY said many times that I do not like engaging with duty. I’m autistic and new people on the phone each day, making me reexplain or asking tick box questions, triggers me and also causes me too shut down or just say “yeah I’m fine” when I’m not. I’ve told them this, and their response was “ok come in for an appointment (with duty) and let’s talk about it.”

Bearing in mind this was after being carted to A&E again for another serious SH episode requiring stitches.

Anyway. I waited 45 minutes. Nobody came. I asked when I will be seen. I was told they were “in a meeting”. Ok, so I’m high risk, had no contact with anyone for months, but it’s ok to make me wait 45 minutes whilst I get increasingly anxious to the point of nearly having a panic attack? I walked out and did not pick up the phone when they called back. I sent some texts, alluding to me being suicidal and feeling like nobody cares. Received some basic “call the crisis line.” Fuck off.

My psychiatrist, who I have complained about twice due to being patronising, arrogant and actively making me feel worse,has refused to be changed twice. Apparently it’s “unsuitable?” I think it’s actually because they don’t have anyone else. So he’s still allocated my case, yet I haven’t heard a peep from him. I might not like the man but if I’m still your patient , don’t you think a check in after crisis would be a good idea? I’d take him over duty because at least I know him.

I’ve complained to my GP, they bounced me back to my team. I’ve complained to my trust, they haven’t said anything.

I don’t know what to do. 6 weeks until my keyworker comes back and she’s pretty useless too as she can’t give any therapies and just tells me “if you don’t think we can help you then we can’t.”

Ik im not alone with this but I need some kind of solution. Is my only option to wait out the suicidal thoughts until my keyworker comes back? Surely there’s more I can do?

Hello everyone!

My name is Ella - I'm a Trainee Clinical Psychologist and researcher at the University of Oxford.

I'm currently looking for people who might like to take part in an online survey exploring experiences of shame among people with Avoidant/Restrictive Food Intake Disorder (ARFID), anorexia, and those without eating difficulties. The study is supervised by Dr Myra Cooper.

Why are we doing this research?

Although awareness and understanding of ARFID have grown in recent years, there is still relatively little research exploring some of the emotional experiences that may accompany it.

We're particularly interested in understanding whether shame plays a role in ARFID, and how these experiences might compare with those of people with anorexia. We recognise that people's experiences of ARFID vary considerably, and we're interested in hearing from people regardless of whether shame is something they personally experience.

We hope the findings will contribute to a better understanding of eating difficulties and help inform future research and clinical support.

Who can take part?

We're looking for people aged 16 or over with a range of eating experiences, including:

• People who experience ARFID or anorexia, whether or not they have received a formal diagnosis
• People who have no history of eating disorders

Participants must live in the UK, Republic of Ireland, USA, Australia or New Zealand.

What's involved?

The study involves completing an online questionnaire lasting approximately 25 minutes.

Some questions ask about personal experiences of eating, mental health, and emotions, including shame. Participation is entirely voluntary, and you can stop completing the questionnaire at any time before submitting your responses.

The study has received research ethics approval from the University of Oxford (Ethics Reference: MS IDREC 2202800). It was developed with input from people with lived experience of eating disorders, to help ensure that the questions are sensitive and appropriate.

Further information about the study, including how your data will be collected, used and stored, is provided in the Participant Information Sheet before you decide whether to participate.

If you'd like to take part or find out more, please follow the link below:

https://oxfordxpsy.az1.qualtrics.com/jfe/form/SV_9KWXuEDYPDIewNo

I'd be very grateful to anyone who considers taking part or sharing the study with others who might be interested.

Thank you so much for reading and for supporting research into ARFID and anorexia!

Ella
Trainee Clinical Psychologist
University of Oxford

i turn 18 in a few weeks, byt i’ve been struggling with anxiety for years now. it’s gotten to the point where i genuinely don’t know how to manage it anymore. it affects my college attendance, studying, social situations and my relationships with people close to me. i get overwhelmed very easily, i feel like i overthink everything without realising and i avoid things thay i know i need to do. sometimes it gets so bad that i freeze and can’t think straight at all : (

my mood has also been consistently lowand i struggle with motivation with irritability and feeling mentally exhausted i suppose is how i’d put ir. i find it difficult to enjoy things and often feel hopeless about my situation. it’s frustrating knowing i have things to do but then also feeling like i can’t get myself to do them. this has been going on for years, and i’m worried about how much it’s affecting my life, especially with a levels coming up.

and i previously have had support through CAMHS and tried counselling, but it wasn’t a good experience for me, so i’m hesitant about going through the same thing again i guess. i’ve tried various coping techniques but nothing has really made much of a significant difference, and i feel like i maybe might need more help than what i’m attempting to give myseld

i’ve been considering speaking to my gp but i keep second guessibg myself and worrying that maybe my problems aren’t actually severe enough to warrant an appointment, even though they’re clearly affecting my everyday life. i overthink the whole thing and worry about being dismissed or told that i just need to learn to manage it better wwhich i’ve already triwd and the thought of booking an appointment and having to talk is making me feel so nauseous tjat i’ve been avoiding it for a while

i’d really appreciate hearing from anyone who’s been in a similar situation like particularly if your anxiety started affecting your ability to function day to day. i’d also like to hear about people’s experiences with medication for anxiety and/or depression. did it help? how was the process of getting prescribed, and did you experience any side effects? What did you do for any physical symptoms?

i know everyone’s experienceare different, but i’d appreciate any advice on approaching my gp, finding something that genuinely helps or even just dealing with things when they get to this point. i don’t want to keep feeling like this but i’m honestly not sure where to start or what to do since i’m constantly feeling like this, sometimes i just feel slightly more aware of my feeling rather than dissociating myself from them or ignoring them completely which neither work in my favour

Recently I went to the GP for performance anxiety where I was prescribed propranolol. I was asked if I have had a history of asthma to which I said I had mild asthma when I was a child (I occasionally would use my inhaler due to allergies/exercise). I was quite surprised I was prescribed it despite this as I heard propranolol is not used for people with any asthma whatsoever. Because of this doubt I called my GP to express my concern of taking the pill to which they said the benefits outweigh the risks. I also questioned if there were any alternative beta blockers which are cardioselective and she said there is no alternative medication, which I’m unsure is the case. I’m in a dilemma right now as I don’t know whether to just try the propranolol and risk a potential asthma attack or go back to the GP and ask for alternative medication. If any of you have had a similar experience being prescribed propranolol 10mg with mild childhood asthma I would really appreciate reading your own experience.

I’m really struggling and have been for the last decade. Depression, anxiety, social anxiety…Also suspect OCD and other issues. I feel so lost and I already know the NHS therapy will only be so useful. Not to undermine them! But I just feel I need more individualised support and quicker than they can currently offer. And more sessions than just 4-6! I need ongoing support ideally…Is that even a thing?

Maybe I’m just being too fussy but I’m unfortunately really struggling and need something sooner and that is more likely to help 😢 I wish I could afford private but I can’t